I would definitely check the EMR vital status in addition to the tumor registry vital status. If you have both loaded into i2b2, it’s very easy to do a query to find how many patients are alive in one source, but deceased in the other. For our tumor registry, I typically run that report every few months and send it to the tumor registry group so they can update their database. Since both data sources(Tumor Registry and EMR) get death information from different sources, they will always have some variation.
Phillip From: Tamara McMahon <[email protected]<mailto:[email protected]>> Date: Monday, December 15, 2014 at 1:44 PM To: Dan Connolly <[email protected]<mailto:[email protected]>> Cc: "[email protected]<mailto:[email protected]>" <[email protected]<mailto:[email protected]>> Subject: RE: vital status from EMR for breast cancer cohort characterization (#67, #32, #204) Dan, For HERON, I plan to use Deceased and Deceased per SSA. Vital status, especially deceased, is needed for the BC survey so it can be excluded from the survey population. Nobody wants to send/receive a survey to a deceased patient. I am not sure about the ALS and Obesity surveys, but I am guessing they will want to exclude deceased from their searches as well. Tamara From: Dan Connolly Sent: Monday, December 15, 2014 11:36 AM To: Tamara McMahon Cc: [email protected]<mailto:[email protected]> Subject: vital status from EMR for breast cancer cohort characterization (#67, #32, #204) Tamara, have you picked out a term for vital status from the EMR for #204? I hear that the breast cancer survey work might want to use not just tumor registry data but also vital status from the EMR. So I went to check on the status of this data element in GPC, and I suppose it falls into the demographics issue (#67<https://informatics.gpcnetwork.org/trac/Project/ticket/67>) though I'm not sure whether that's been explicit yet; the focus has been: * Demographics * Age * Gender * Race * Ethnicity Then I looked to see where it is in the PCORNet CDM, and I found... it's not. There's no vital status nor date of death. The closest I found is "Discharged alive" vs "Expired" in ENCOUNTER.DISCHARGE_STATUS. -- Dan ________________________________ UT Southwestern Medical Center The future of medicine, today.
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