Although vital status may not be in the PCORI CDM we have an integral data item for patient dimension in i2b2. We are loading it from our mortality reports in Epic but would also be willing to bear modest expense to obtain the social security death data Jim
James R. Campbell MD [email protected]<mailto:[email protected]> Office: 402-559-7505 Secretary: 402-559-7299 Pager: 402-888-1230 On Dec 15, 2014, at 5:19 PM, "Bos, Angela" <[email protected]<mailto:[email protected]>> wrote: We at San Antonio would be interested in sharing. We have a process similar to what Philip described where our EMR and tumor registry teams report deaths to each other on a monthly basis, but the systems are never truly in sync. Updates on each side are from various sources and not done on a regular basis. We would greatly benefit from a more authoritative source for this information. ---- Angela Bos Clinical Informatics Research Division Department of Epidemiology and Biostatistics UT Health Science Center at San Antonio Phone: (210) 562-4074 From: [email protected]<mailto:[email protected]> [mailto:[email protected]] On Behalf Of Russ Waitman Sent: Monday, December 15, 2014 3:37 PM To: 'Phillip Reeder'; Tamara McMahon; Dan Connolly Cc: Steve Fennel; [email protected]<mailto:[email protected]> Subject: RE: vital status from EMR for breast cancer cohort characterization (#67, #32, #204) We might think about whether we at KUMC might sign the paperwork with NIST so we can distribute our SSA files to other GPC partners as part of our existing agreement. http://www.ntis.gov/products/ssa-dmf/#<http://www.ntis.gov/products/ssa-dmf/> There used to be a signification $5000+ charge associated with acting as a distributor but it seems since the changes in the interim rule http://www.gpo.gov/fdsys/pkg/FR-2014-03-26/pdf/2014-06701.pdf , that may be gone. http://www.ntis.gov/assets/pdf/ssdmf-raw%20data%20form.pdf We want to check though that we are complying with the proper protocols with use of the file. Clearly enhancing trial recruitment and research for PCORI should be in scope. Do we think enough places would want to use our feed? Russ From: [email protected]<mailto:[email protected]> [mailto:[email protected]] On Behalf Of Phillip Reeder Sent: Monday, December 15, 2014 1:57 PM To: Tamara McMahon; Dan Connolly Cc: [email protected]<mailto:[email protected]> Subject: Re: vital status from EMR for breast cancer cohort characterization (#67, #32, #204) I would definitely check the EMR vital status in addition to the tumor registry vital status. If you have both loaded into i2b2, it’s very easy to do a query to find how many patients are alive in one source, but deceased in the other. For our tumor registry, I typically run that report every few months and send it to the tumor registry group so they can update their database. Since both data sources(Tumor Registry and EMR) get death information from different sources, they will always have some variation. Phillip From: Tamara McMahon <[email protected]<mailto:[email protected]>> Date: Monday, December 15, 2014 at 1:44 PM To: Dan Connolly <[email protected]<mailto:[email protected]>> Cc: "[email protected]<mailto:[email protected]>" <[email protected]<mailto:[email protected]>> Subject: RE: vital status from EMR for breast cancer cohort characterization (#67, #32, #204) Dan, For HERON, I plan to use Deceased and Deceased per SSA. Vital status, especially deceased, is needed for the BC survey so it can be excluded from the survey population. Nobody wants to send/receive a survey to a deceased patient. I am not sure about the ALS and Obesity surveys, but I am guessing they will want to exclude deceased from their searches as well. Tamara From: Dan Connolly Sent: Monday, December 15, 2014 11:36 AM To: Tamara McMahon Cc: [email protected]<mailto:[email protected]> Subject: vital status from EMR for breast cancer cohort characterization (#67, #32, #204) Tamara, have you picked out a term for vital status from the EMR for #204? I hear that the breast cancer survey work might want to use not just tumor registry data but also vital status from the EMR. So I went to check on the status of this data element in GPC, and I suppose it falls into the demographics issue (#67<https://informatics.gpcnetwork.org/trac/Project/ticket/67>) though I'm not sure whether that's been explicit yet; the focus has been: * Demographics * Age * Gender * Race * Ethnicity Then I looked to see where it is in the PCORNet CDM, and I found... it's not. There's no vital status nor date of death. The closest I found is "Discharged alive" vs "Expired" in ENCOUNTER.DISCHARGE_STATUS. -- Dan ________________________________ UT Southwestern Medical Center The future of medicine, today. _______________________________________________ Gpc-dev mailing list [email protected]<mailto:[email protected]> http://listserv.kumc.edu/mailman/listinfo/gpc-dev The information in this e-mail may be privileged and confidential, intended only for the use of the addressee(s) above. Any unauthorized use or disclosure of this information is prohibited. If you have received this e-mail by mistake, please delete it and immediately contact the sender.
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