#304: accuracy of ALS diagnosis data collection
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Reporter: rwaitman | Owner: mish
Type: enhancement | Status: assigned
Priority: major | Milestone: cohort-char-als
Component: data-stds | Resolution:
Keywords: | Blocked By:
Blocking: |
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Comment (by lv):
Here's an update on the process and results to date for Marshfield/MCRF:
Searching by diagnosis alone results in 1219 patients, which was deemed
too large to validate manually by the study team (Bob Greenlee and Deb
Multerer).
After discussion, the decision was made to restrict the population as
follows:
335.20 OR 335.24 OR 335.29 - occurs > 1x
AND
Enrollment - Two Encounters or Wellness Within 3 Years
AND
NOT Deceased
Patient Count = 89
The study team then requested that we add the location where the patient
receives care from a neurologist, which would make it easier for our
physician lead to review. Results weren't great.
- In the past year, 34 of 89 saw a neurologist
- In the past 3 years, 59 of 89 saw a neurologist.
We pulled all appointments for the 89 patients over the past year and
categorized as those who saw a neurologist and those that haven't.
I don't have complete results, but we're seeing a lot of fallouts. Some
patients are valid, but in hospice. Some are valid, but being followed at
other institutions (Mayo, UW Health, New York, etc.). Some had rule-out
diagnoses on the record in the distant past. Several haven't been seen at
Marshfield for ALS in the past 2-3 years.
--
Ticket URL:
<http://informatics.gpcnetwork.org/trac/Project/ticket/304#comment:4>
gpc-informatics <http://informatics.gpcnetwork.org/>
Greater Plains Network - Informatics
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