Thanks for this update; it looks important enough to share with all of gpc-dev 
and it looks like a few work items should get their own tickets (and perhaps 
milestones). Sravani, have you started on that?

Meanwhile, I'm having trouble understanding some parts. How should I read " 
First ADAPTABLE patient enrolled" while the IRB stuff isn't in place? Or 
perhaps some site has contracts and IRB in place sufficient to enroll a 
patient? 

-- 
Dan

________________________________________
From: GPC Informatics [[email protected]]
Sent: Tuesday, April 19, 2016 1:16 AM
To: Brittany Zschoche; [email protected]; Sravani Chandaka; Dan Connolly
Cc: [email protected]
Subject: Re: [gpc-informatics] #384: ADAPTABLE teleconference records

#384: ADAPTABLE teleconference records
-----------------------------+--------------------------------
 Reporter:  bzschoche        |       Owner:  lswander
     Type:  problem          |      Status:  new
 Priority:  minor            |   Milestone:  adaptable-accrual
Component:  data-sharing     |  Resolution:
 Keywords:  adaptable-study  |  Blocked By:
 Blocking:                   |
-----------------------------+--------------------------------

Comment (by lswander):

 '''Highlights from Data Strategy Call (4.8.16)'''
 In addition to the 7 core CDM tables CDRNs must also have populated by
 July 2016:
 •       LAB_RESULT_CM
 •        DEATH
 •       DISPENSING or PRESCRIBING
 Patient Portal User Acceptance Testing (April 13-16, 2016)
 Patient Portal Go-Live (April 18, 2016)
 First ADAPTABLE patient enrolled (Portal URL: AdaptablePatient.com)
 Reminder: Contracts and IRB approval must be prior to enrollment Timeline
 (cont.)
 In addition to the 7 core CDM tables CDRNs must also have populated by
 July 2016:
 •       LAB_RESULT_CM
 •       DEATH
 •       DISPENSING or PRESCRIBING
 “Approved for Research” Status by July 2016
 •       ADAPTABLE CDRN/Datamarts will have gone thru data characterization
 and prep-to-research steps. They should be at full data characterization
 complete.
 Date Obfuscation by 4th quarter 2016
 •       CDRNs/Datamarts that obfuscate dates will need to give patient-
 level information about how to correct the dates to DCRI for patients
 enrolled in the trial. This will be a supplemental file (specifications
 forthcoming).

--
Ticket URL: 
<http://informatics.gpcnetwork.org/trac/Project/ticket/384#comment:19>
gpc-informatics <http://informatics.gpcnetwork.org/>
Greater Plains Network - Informatics
_______________________________________________
Gpc-dev mailing list
[email protected]
http://listserv.kumc.edu/mailman/listinfo/gpc-dev

Reply via email to