The UK Creutzfeldt-Jakob Disease Surveillance Unit
The incidence of Creutzfeldt-Jakob disease (CJD) is monitored in the UK by the CJD surveillance unit based at the Western General Hospital in Edinburgh, Scotland. The unit brings together a team of clinical neurologists, neuropathologists and scientists specialising in the investigation of this disease. This document is intended to summarise the research in progress at the CJD unit and also provide some background information about CJD and other human spongiform encephalopathies. We have also provided some links to other resources and contrary points of view available on the Web.
Information on the new variant of CJD.
- Reproduction of the complete Lancet article published by the CJD Surveillance unit in April of this year.
- Figures for the number of confirmed cases of the new variant of CJD and referrals of suspected cases of CJD to the suveillance unit over the last five years.
- Text of a letter written by Dr Robert Will to every Neurologist in the UK. This letter describes in some detail the clinical and pathological variants observed between sporadic CJD and the new variant of the disease which has been identified here at the CJD unit.
- The original statement issued by SEAC, the government's advisory committee on spongiform encephalopathies, about these ten cases of the new variant of CJD.
Help and Advice.
- Text of a short booklet originally produced by the CJD unit provides background information about the disease.
- Addresses and information about charities and organisations interested in CJD.
Creutzfeldt-Jakob Disease Survelliance.
- Text and figures of the lastest annual report of the CJD unit.
- CJD figures from across Europe . The UK surveillance project is one member of a EU collaborative programme of research into CJD.
Practical information about CJD.
- The clinical aspects of this disorder are described.
- Possible investigations undertaken in cases of CJD are described here.
- The neuropathology of CJD as observed in the CJD surveillance unit laboratory.
- A Glossary of medical and scientific terms relevant to CJD.
Creutzfeldt-Jakob Disease research.
- Background information about CJD and its relationship to other diseases in humans and animals.
- A review of our recent work on image analysis in the investigation of CJD neuropathology.
- Complete reference list of scientific research articles produced by the CJD surveillance unit since 1990.
Other links
- Information on BSE and CJD provided by the British Medical Journal.
- The World Health Organisation have provided information on BSE and the possible risks to humans.
- Research Report on Transmissible Spongiform Encephalopathies from the Biotechnology and Biological Sciences Research Council.
- The Spongiform Encephalopathy Research Campaign provides information on Bovine Spongiform Encephalopathy (or mad cow disease).
- Vegetarians International Voice for Animals VIVA includes some recent information on BSE.
- Position statement on BSE from the Institute of Food Science & Technology.
- The Yahoo Index for CJD information on the WWW.
About ourselves
- The people involved in the research being undertaken at the CJD unit.
- The setup, details of the funding of the CJD and the collaborative projects we are involved in.
- Our address should you wish further contact.
[EMAIL PROTECTED]
