Thanks for this Bert ? a very helpful summary of the situation.

Cheers, Sam

 

From: openehr-technical-bounces at openehr.org 
[mailto:[email protected]] On Behalf Of Bert Verhees
Sent: Friday, 20 March 2009 6:27 PM
To: For openEHR technical discussions
Subject: Re: Why is the editor not opening ADL files?

 

Sam, I often brought this subject up, maybe five times last year, the answer 
differed from, "We'll add demographic archetypes to the ArchetypeEditor within 
a year" to now carefully stating in a direction that demographic archetypes 
will loose the relevance. I know Sam, the latter is your position for longer 
time. 
I believe, we have to distinguish the position of Ocean as a company, and the 
definition of openEHR as a worldwide concept/standard.
As I said before, I don't think that Ocean should add demographic archetypes to 
their tooling. It would be nice if they do so, but that is their choice. They 
are a company, and have their own priorities.

You are addressing WIlliam in this message, but it is a message on a public 
mailinglist. I see your message as indirectly addressed to the community. So I 
am not answering for William, I am answering on my own behalf.

I am building software based on openEHR, and I also have to deal with these 
questions and positions.
It is very easy to build a demographic service based on archetypes and RM. I 
have done that. So I have a need for demographic archetypes.
It is also very well possible to connect a demographic service which is not 
based on OpenEHR. My customers have a choice. 
It is also possible to use messages of al kind, and archetypes based on the 
message structures to import demographic data, this is very useful for 
organisations which want to migrate to an openEHR system. 
This is possible because of the design of flexibility in the archetypes-concept.

The interface/API I created has only the possibility to import demographic data 
based on archetypes, and to recognize these data as being demographic and 
therefore to store that in the demographic service, without any extra 
programming effort. 
If a customer has a demograpic service that is not based on OpenEHR, it 
probably publishes its own API to be used. 
So, in my API I am only dealing with demographic data based on 
OpenEHR/archetypes.
I can, if the customer wants, cosmetically integrate his demographic-service 
API (if it is not based on OpenEHR) in my own API, so it looks like a single 
interface to be used. 
In that case, there will be no demographic archetypes be needed in the system, 
in that case my system does not process demographic data, only references them.

OpenEHR is scaleable, that is one of its powers. Scaleable means, it can fit to 
small scales too. In small environments, there may be  a need for a locally 
demographic service. 
What is also important. OpenEHR has done a lot of effort to be flexible, to fit 
in as many health inforation system-requirements as possible, even in 
requirements which are not yet defined. Or which are defined in a far away 
country of which we haven't thought yet. 
It is not said that laws anywhere in the world will allow demographic data to 
be centralized and shared. 
In the Netherlands, at this moment, 300.000 people choose not to be added to a 
national health information system. This number is expected to grow when the 
national healthcare system becomes a fact.
This means that demographic data will stay locally on the healthcare sites, for 
example, a GP, a dentist, a hospital. This means, the Dutch systems tolerates 
contradictory demographic data. The dentist may not know that you are married, 
if you don't want him to know that. It is a design choice based on what people 
want. The people in the Netherlands have a possibility to opt out of the 
national healthcare system.
OpenEHR must facilitate that, and it does. It can run with integrated 
demograpic data, or separate demographic service, being based or not based on 
openEHR. Very flexible.

Regarding to OpenEHR itself. 
It is technically possible to remove the demographic section complete, because, 
in fact, the demographic rm-classes are no more than datastructures with a 
special typename which indicates being demographic. One could conclude that 
they are, for that reason superfluous. 
But there are advantages to having a demographic section, f.e. a  future 
possibility to make changes to the demographic RM-part part only. 
An other advantage is that there is a way to technical distinguish if a 
RM-datatructure contains demographic data, in this way helping to avoid to blur 
the demographic service concept, and let slip demographic-data into the 
EHR-data.

Bert

Sam Heard schreef: 

Hi William

 

We are taking a service oriented approach here and it has benefits. You can 
store demographics in the EHR if you like and there are archetypes to allow for 
this. But generally this data is stored elsewhere in real systems. It is used 
for administration, billing and a lot of other things. Many hospital have large 
systems before they implement the EHR.

 

So the EHR as a service can exist without recording the demographic information 
in the EHR itself. In France it is illegal to do so ? requiring separate 
security to get access to demographic and personal health information.

 

In our environment, the EhrGate component manages the interface to the 
demographic service ? allowing demographics to be returned in queries and for 
accountability etc. This could be from an openEHR demographic service if that 
was suitable for that environment ? or any other demographic system.

 

Finally, any information between systems is sent as an extract. This brings 
together the demographic and personal health information for transport, 
production of a CDA or whatever is required.

 

I hope this helps. It might not seem intuitive but it is very practicle and a 
result of a lot of companies being involved in the architecture design (all 
with different demographic services and requirements).

 

Cheers, Sam

 

From: openehr-technical-bounces at openehr.org 
[mailto:openehr-technical-bounces at openehr.org] On Behalf Of 
[email protected]
Sent: 17 March 2009 00:56
To: openehr-technical at openehr.org
Subject: Re: Why is the editor not opening ADL files?

 

Sam,

this below - demographics not relevant in the EHR is like the most confusing 
comment ever I heard from you. 

About whom are we going to create a EHR then? If it is not possible to have the 
individuals name, id, birthdate and sex in the EHR (generally named patient 
demographics), it becomes useless in my vue. 

Or do I miss a point here? 

William

In a message dated 16-3-2009 8:39:20 W. Europe Standard Time, sam.heard at 
oceaninformatics.com writes: 




In the meantime, I just want to be clear that the demographic model archetypes 
cannot be used in the EHR ? they are not relevant there.

  

Cheers, Sam

  



Sincerely yours,

dr. William TF Goossen
director 
Results 4 Care b.v.
De Stinse 15
3823 VM Amersfoort
the Netherlands
emails: 
Results4Care at cs.com
williamtfgoossen at cs.com 
info at results4care.nl 

phone + 31654614458
fax +3133 2570169
www.results4care.nl
Dutch Chamber of Commerce number: 32133713 

 



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