Dear all,

As Ed Hammond said it somewhere earlier in this discussion:  It's like World 
Peace - a great idea but probably not achievable.

I agree with Ed if we think along the line of ?one solution should fit all? and 
I also think that if we create different solutions for different purposes World 
Peace is achievable after all. Please let me explain.

The 21090 standard is a fact, is here to stay and is not going to change 
(soon). As William G. said it has been a tremendous accomplishment and Graham 
did a hell of job in finding consensus between all parties involved. Based on 
the reactions of some in this list and the fact the the majority of CEN and ISO 
voted for it, 21090 fits it?s current purpose which is:

?provides set of data type definitions for representing and exchanging basic 
concepts that are commonly encountered in healthcare environments in support of 
information exchange in the healthcare environment? 

The way I see it, the main point of discussion untill now is the question: 
exchange between who and/or what. This is also where the solution lies. 

Although it isn?t stated specifically the current use of the 21090 seems to be 
primarily at the level of functional interoperability (? the ability of two or 
more systems to exchange information (so that it is human readable by the 
receiver) (ISO/TR 20514:2005)). I?m sure it?s intended use is also at the level 
of (some) semantic interoperability but allow me to make this distinction to 
explain the need for different solutions. 

What Tom and many others on the list here are striving form is (let?s say an 
?advanced level? of) semantic interoperability (? the ability for information 
shared by systems to be understood at the level of formally defined domain 
concepts (so that information is computer processable by the receiving system) 
(ISO/TR 20514:2005)). 

With advanced I mean that systems can not only support but eventually take over 
certain critical functions in the medical process. This goes beyond the level 
of decision support. In in the (not so far) future also fully automated systems 
based on input from several parties will be created. For instance automated 
triage of after hours GP visits, assess whether someone can get a refill 
prescription, an agent that checks for medication interaction, automated 
screening for certain risk profiles, follow up of patients with a certain 
diseases, etc, etc.

Whether we like it or not, systems have to support and even take over some 
functions of healthcare providers in order to be able to provide sufficient 
care 10-15 years from now. If not for that reason alone,  this type of 
applications can (hopefully) help to improve the quality of healthcare.  For 
instance by making personalised medicine possible at a large scale.

These advanced systems are (potentially) going to decide on matters of life and 
death and  therefore they need to be reliable in that the outcome must be 
correct and similar in every system that uses the same standard(s). 

I fully agree with Tom?s remark that this requires an engineered standard 
instead of one that is the result of a political process (If you know the 
person who would travel on a plane built by 'democracy' rather than 
engineering, please introduce us... ))


So here?s my proposal

We leave the 21090 for what it is right now and focus on a datatype standard 
for semantic interoperable systems to be used in critical healthcare processes. 
This is a new and very specific scope which not only justifies but calls for a 
new standard. 

The thing we?re going to do differently is that for the standard creation 
process we?re - initially - going to bypass the political process. To do so, a 
small group of dedicated engineers (2-3 from all parties involved/ interested, 
is composed. Based on the reactions on this list it should be possible to get 
at least engineers of HL7, DCM,13606, and openEHR involved. Preferably this 
should be extended with engineers from IHTSDO, NHS, the Swedish implementation 
group and ?.? Lets say a maximum of 20 people. The goal  of this group is to 
create a datatype standard for semantic interoperable systems to be used in 
critical healthcare processes which addresses the following requirements:

- a set of clean, clear core data types 
- a set of wrapper types designed to use the core types, optimised for messaging
- other sets of wrapper types as needed, optimised for other specific purposes, 
e.g. storage or whatever

Also the standard should be modular in order to expand it quickly and easy in 
the future if new use cases would require that.

If all parties involved agree upon the end result, the standard will be brought 
to CEN/ISO to be included into the formal standardisation process. This of 
course would need some political work after all, since all CEN/ISO members 
would need to vote for this need standard in order to make it  official.

I?m very confident that if the standard is developed and agreed upon by the 
selected engineers from all parties described above, that shouldn?t be a big 
problem?.


So what do you think? Who?s in and is 3 months an obtainable goal for a first 
draft?



Cheers,

Stef



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