On Sat, 28 Dec 2003, Tim Churches wrote: ... > > For example, the Philippines national cancer registry can create a set > > of OIO forms - each form describes the initial presentation of a > > cancer case at the time of first diagnosis. > > > > In this example, the top level "clinical concept" is "cancer case at the > > time of first diagnosis" - which is modeled via an OIO form. For example, > > the "Prostate Cancer Detected" form, the "Ovarian Cancer Detected" form, > > etc. > > > > Within each OIO form, there will be multiple "concepts" (=Question Items) > > that serve to describe each reported cancer case. > > Cancer registries are something I know a bit about, having worked in one > for a while. So how would OIO handle a cancer registration system? > > The basic model for a population-based cancer registry is as follows: > Each person in the (usually geographically-defined) target population > may have zero or more cases of cancer. A person is defined by their > demographic details, (name, DOB, sex, address etc) and some of these > details may change over time, and these changes need to be recorded.
Tim, OIO's patient ID module maintains identifiers that uniquely identify each person. Additional demographic attributes (e.g. sex, address) can be recorded in a "Demographics" form. > A case of cancer is distinguished by time of diagnosis, tissue of origin > (topology) and histology (morphology). If these attributes are the same across all cancer types under study, then it may be reasonable to record them on the same form (and apply that one form to all cases being reported). > There are some additional rules relating to metachronous tumours in > paired organs or the same organ (cancer of the left kidney in 1982, and > of the right kidney in 1989, or multiple colon cancers appearing over > tyhe course of a decade). For attributes that are unique to some cancer types, these should appear on specific forms that only apply to the reporting of those particular cancers. > For each case of cancer, there are zero or more of each of the > following: histology reports, treatments, hospital admissions, and > various other details, and zero or one date and cause of death. Each of these should be a form: for example, a form for recording histology results, treatment (perhaps a form for each treatment type - radiation, chemotherapy, surgery, etc), hospital admission, and death. > Andrew, perhaps you could sketch out a word picture of how that would be > handled in OIO, for our education? Or even a rough sketch of an > implementation in OIO? As above, please let me know if you like clarification for any of these. Best regards, Andrew --- Andrew P. Ho, M.D. OIO: Open Infrastructure for Outcomes www.TxOutcome.Org
