Hi, I am an OTR with 20 years of experience and I have only had 4 patients
with this disorder in the last 9 years. It is a devastating condition that
only gets worse. For treatment, I assessed cognition for safety and
Judgement for dressing and grooming. Sometimes these patients develop
agnosia and even brushing teeth can be dangerous. Some patients have
benefited from a small laptop type of machine that speaks for them in
phrases and words, or a picture board if their cognition has declined to
that point. I also did a fair amount of education for nursing about the
visual and cognitive limitatiions that effect eating, dressing and
participating in the floors's activities. This condition has meant that I
treat for a short while and then as the person declines more, I may be
asked to step in for adaptive utensils, meal set up, ADL assessment, and
cognitive assessment to establish a new program for the pt on the nursing
floor. Another Dx. that is mildly similiar is lateral sclerosis which
allows pts to use the speaking device longer as cognition remains high but
the incidence of dysarthria and dysphagia is high and gets much worse. Hope
this helps. I try to increase the quality of the pts life and that means
making adjustment to their care plan based on your findings. Wanda
----- Original Message -----
From: "Guy and Kaylene" <[EMAIL PROTECTED]>
To: <[EMAIL PROTECTED]>
Sent: Tuesday, September 04, 2001 5:25 PM
Subject: Progressive Supranuclear Palsy
> To the List Serve:
>
> I am a second year OT at the Texas Tech Health Sciences Center.
> I had a lady come to me seeking help with a relative that has
> Progressive Supranuclear Palsy. She ask me first if I thought that
> OT could help, second how we could help. She also ask if there was
> any technology that was out there that could help her to communicate
> with the world around her. She has trouble speaking, eye movements
> are week and limited, but she still has relatively well functioning
> arms and hands. I can find no one here that is remotely familiar
> with this disorder. Has anyone on the list serve treated someone
> with this disease, if so what treatments did you use. Can anyone
> help me with what technologies are available to help her communicate
> and where could I find them. Any help would be greatly appreciated.
>
> Guy W. Brown OTS
> Texas Tech School of Allied Health
> Lubbock, Texas
>
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