Hi Ron
I've read Rob's post and agree for the most part. However he left out what
does the client WANT to do? If ever there was a place for the COPM it is
here. My mind is full of questions. What was her life before the injury?
What does she miss most? Is the four adult household the previous norm or is
it temporary? Is there someone at home with her or does she need to manage
alone for part of the day? Not sure why Rob thinks there are no child care
demands (the child's age perhaps).
I like Rob's emphasis on analysing every task for simplicity and
accessibility. Be aware that she is forming habits and routines that need to
last her for many years. People with SCI age just like the rest of us so
staying open to continuous adaptation is a good attitude to develop. Energy
conservation is critical so available energy is focused on the most
meaningful things. Down the road some thought then to how to manage if she
gets the flu, is especially tired etc.
Is employment or further education a possibility?
Are there community resources? I'd be looking at the Canadian Paraplegic
Association for support both physical and emotional. What about the social
network? Is there someone with the skills to lower closet rods, install
railings etc.
What has been addressed in rehab?
What were this couple's plans for their family? Were they planning more
children? If no-one else is addressing issues of sexuality and family
planning you need to be prepared to do this or refer. One of the most
satisfying experiences I've ever had was a very similar situation helping my
client to manage and enjoy pregnancy, birth and newborn care. She was
already independent in her w/c when I met her.
I really like your request for collaboration. It will be easier to focus
when the questions are more specific.

A thought to end - Independence doesn't always mean doing everything
yourself with no help. A critical part of independence is taking
responsibility for your own activities, planning, supervising, negotiating
and appreciating the assistance that others provide.

Go for it, Ron. She's a lucky client. Joan


-----Original Message-----
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] On Behalf
Of Ron Carson
Sent: Friday, May 25, 2007 3:24 PM
To: Ron Carson
Subject: Re: [OTlist] OTnow Colloboration With Spinal Cord Injury

Here are some specifics:

1. There is no insurance

2. The patient is young, late 20's, mid 30's

3. She lives with her husband, sister and her husband

4. She has a 4 y/o daughter

5. There is no primary care doctor; She typically uses the ER

6. We have just starting weaning her off her TLSO

7. She has a donated power w/c (reclining captain's back)

8. She has no pressure ulcers

9.  She  is able to sit without assistance and without her TLSO. But she
has LOB with UE movement. But this will shortly correct with practice

10.  She  is undergoing a sacral nerve stimulator trial to hopefully d/c
cathing and suppository/digital stimulation. It seems to be working OK

11. She has good UE strength

12.  Initial goal is indpendent with transfers. Currently uses a sliding
board  with  min  - max assist depending on incline. I envision that she
will be able to d/c sliding board and do her transfers w/o assistance.

13.  I also think a long term goal is for her to get a ultralight-weight
w/c.

14. She has a weight issue but she is struggling to find enough activity
to off-set her caloric intake.

15.  They have no computer so on-line resources are not possible at this
time.

OK, hit me with some transfer ideas!!! And any other suggestions.

----- Original Message -----
From: Ron Carson <[EMAIL PROTECTED]>
Sent: Friday, May 25, 2007
To:   [email protected] <[email protected]>
Subj: [OTlist] OTnow Colloboration With Spinal Cord Injury

RC> Hello All:

RC> I  recently  agreed  to  treat a patient who suffered a T9-T10 SC injury
RC> late  last  year. She has just been d/c to her home after several months
RC> of rehab. While I have worked with SC injury patients, I do not consider
RC> it  a speciality. There are SO many issues to manage and address that it
RC> can  be  a  bit  overwhelming.  Given  that I work alone, I don't have a
RC> 'team'  to bounce off ideas, so I'm hoping that OTnow members will be my
RC> surrogate team? <smile>

RC> I would like to give and receive advice on topics relating to this case.
RC> Do you think this will work? Will people participate??

RC> Thanks,

RC> Ron




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