Hi Ron! Yes, I'm very willing to be part of your "bounce off" team! I never _worked_ with SCI patients - but I sort of live with one (boyfriend is a complete C5/C6 quad) - and I know how hard it is to find knowledgeable health care people - you have to become an expert on your own body - I guess I can say we are:-)
Questions: - The TLSO is a brace, yes? Is she wearing it because her injury site isn't stable? (I believe it's a bit unusual so long after injury, but not sure..) - What is "LOB with UE movement"? - "She has a donated power w/c (reclining captain's back)". No manual chair?? - "..several months of rehab" - sounds like a lot these days for a low injury. Were there complications? I do have a lot of online resources to recommend to you. And I have the e-booklets on "expected outcomes" for different levels of SCI. Would like to send you the two relevant ones - for T1-9, and T10. They are big - can I just attach them to a private email to you? About transfers, you can find several private transfer videos on the Care Cure forums, here: http://sci.rutgers.edu/forum/showthread.php?t=50721 Besides that the Care Cure forums are also The Place to get all kinds of questions answered - by both survivors and professional people. The sacral nerve stimulator trial sounds exiting - bowels and bladder are two biggies. Just to imagine to get them out of the way--- wouw! But I didn't get this one: "She has no bowel/bladder control so toilet transfers are not an issue." Whether she uses suppository and dig stim, or sacral nerve stim for bowels - sitting would still be the best way to go. (I can attest to the side lying position being way slower!) Or, are you saying she has no routine/program - it just happens...?? BTW - cathing can be done in the chair - but if using the sacral nerve stimulator - wouldn't one prefer to be on a toilet, or commode? Besides that I second what Joan said - what does she want and need to do? What has been addressed in rehab? The job now is to implement and build on (the relevant parts of) it. I guess there's a discharge letter - maybe sit down together and work your way through it. Now that she's home it may look very different to her, and what comes up might be very relevant input for the COPM, for starters.. Wishing you both good luck!! susanne, denmark -- Options? www.otnow.com/mailman/options/otlist_otnow.com Archive? www.mail-archive.com/[email protected] ************************************************************************************** Enroll in Boston University's post-professional Master of Science for OTs Online. Gain the skills and credentials to propel your career. www.otdegree.com/otn **************************************************************************************
