Recently, I was talking with a bunch of other parents of teens who have high-functioning autism.[*] We were talking about the massive cut-backs in public services that have been happening and loom on the immediate horizon. But the dark cloud may have a silver lining. Here in California, it seems, parents spend tremendous amounts of time and effort on the phone and in meetings (due process, etc.) hassling with the care-givers and -financers in order to get appropriate services or something reasonably close to it. In other places (such as Australia or most of the U.S.), it seems, many fewer publicly-provided services are available. But this (bad) situation can encourage a positive response: while in California, the state-sponsored Regional Center used to provide services such as "respite care" (time away from the damned kid), in other places, the parents pool resources to provide respite care to each other. There's less time spent hassling the care-givers and -financers, because they don't do much if anything.
This kind of "mutual aid" (a concept central to libertarian socialist or anarchist thought, according to the Wikipedia) can be immensely liberating. However, I can imagine that a lot of time and effort can go into hassling other participants if feelings of solidarity are weak. If successful, this mutual aid can promote feelings of solidarity, encouraging a virtuous circle. In the US in the 19th century, labor unions were much more involved with this type of activity (in burial societies, providing unemployment insurance) than they are today (where the Andy Stern business union model of dues extraction seems the rule). If the current recession turns into something more serious, it could combine with the longer-term trend of public-service cut-backs to encourage more mutual aid. This might in turn be the basis for broader "grass roots" political movements, independent of the political establishments. On the other hand, people might look to President Obama as the source of all solutions, sticking to the atomizing electoral model of politics. The latter can have the benefit of providing _standardized_ public services, while decentralized mutual aid tends to produce a division between groups having different amounts of income and health, belonging to different ethnic groups, etc. But it does not encourage mass grass-roots participation, except in short-lived waves. [*]It's the kids who have it, not the parents. That ambiguity is a problem with the "PC" language that prescribes "a person with a disability" to replace "a disabled person." I'm generally in favor of that "person first" language, by the way, because in the latter case the person is _identified_ with the disability instead of having the disability seen as contingent. -- Jim Devine / "Nobody told me there'd be days like these / Strange days indeed -- most peculiar, mama." -- JL. _______________________________________________ pen-l mailing list [email protected] https://lists.csuchico.edu/mailman/listinfo/pen-l
