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Those who are MIA (me included)

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From: MinnieChat

Wintersnowfairie,

 

Big hugs… You have been through so much! The complications for radiation therapy for pituitary tumors mainly involve loss of pituitary hormones. Over time, you will have to replace the pituitary hormones as they drop off. You shouldn’t need radiation to other areas. It is really important though, that if you do decide to have radiation, to do some research on what kind of radiation that should you proceed for your type of tumor. Many on the boards are discussing Novalis, and there is sterotactic, gamma knife and cyber knife. Find out who is the best and go there (even if it is travel). It is your life and you need to take care of you.

 

Even if your tumor is slow growing, they need to watch it. You will also need your endo to watch your hormonal profile.

 

There is no reason to hang you hat and be done. I really feel that you will be around for a very long time. I think your puppies are a wonderful emotional support for you, and I am really sorry that your hubby is not as supportive as what you would like him to be. I can relate, because my journey myself has been by myself (for the most part). I do pull strength though from my husband, because even though is sympathy is shallow, he really encourages me to get on with my life. We need that too, lest we hide from the world and ourselves, and would never see the rose bloom, the birds sing, or the waters flow through the streams.

 

I have also received very much needed support from the online community, and for that, I am so grateful.

 

Don’t be a stranger. We love to hear from you! We are also here to give you those internet hugs (but will leave those furry kisses to the Miss Cinder!) Give her a good scratch behind the ears for us!

 

Minnie


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