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HGH--ANd Recurring tumor

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From: MinnieChat

Greg,
Go to the center where you had your MRI done and see if you can get copies. I know the last time I got a copy, it was electronic, and it was no charge. If I wanted a film, it was a charge per sheet. Good luck on your consult! I hope the doctor is open to helping you!
 
Jerfly
 
Typically the doctors know pretty quickly if you have a cerebral spinal fluid leak. For one, before they close you, typically, the surgeon examines the area with his operating microscope to see if there is a leak. If the surgeon sees a leak, he will put a pice of fat and or a piece of thigh muscle over the leak. You will wake up to having a drain, called a lumbar drain, placed in your back, and you will be instructed to lay no more than a 30 degrees up in your bed. You will have this drain in for about 4 days. The drain keeps the spinal fluid pressure down, so it doesn't rupture the sutures.
 
If you are felt to not have a cerebral spinal fluid leak during surgery, the staff asks you questions about headaches - do you have them more intensely when sitting up vs lying down, and if you have/taste salty liquid in the back of your throat.
 
Sometimes, when a patient has had a prior surgery and a cerebral spinal fluid leak, the chances for recurrent leaks are very great. Depending on the leak, the treatment could be a lumbar drain, a blood patch, or even repeat surgery to go in and repair the leak.
 
Before you are discharged, your doctor will give you a bunch of hospital discharge information, and information specifically on what to do and when to call the doctor.
 
The point is that if you have surgery with an experienced pituitary neurosurgeon, the hospital and staff should know very quickly if you do have a cerebral spinal fluid leak, and what to do before you leave the hospital. In some cases, a leak begins after the patient has left the hospital. The direction most often given is to contact the hospital and surgeon directly if there are post operative complications. 
 
The risk of an untreated leak is infection which could lead to menengitis.
 
Here are some informative links:
Pituitary Society - Pituitary Surgery
 
PDES - Transsphenoidal Surgery - Side Effects of Surgery
 
Hope this helps.
Minnie

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