Hey Hammerthumbs,
I have nothing to offer than empathy. Sorry to hear the tumor hasn't shrunk yet. After 1 year on Bromocriptine, my prolactin has dropped from 550 to less than 2. But, after a year, it's still pretty much the same size. Very disappointing. One of my doctors at the Mayo in Rochester, MN (yep, that Mayo) said it may take a couple years. You mentioned yours is pressing on the optic nerve, so I'm not sure of the implications. I got really lucky and found it before that, so I think that "no growth = good" in my case, which means I can wait. It may mean something similar to you, except the optic nerve thing is a yellow flag. Carotid artery - yeah, me too. Sucks. If you have time/finances, it might be worth a trip or a call to the Mayo clinic. They are so at the cutting edge of knowledge. Also, you could check with the U of Toronto medical - their research is really good on this stuff.
I found out when I was 29, too, and I consider finding it a blessing. Don't know, man - Minnie is right - it's tough even for a tough guy. We've a similar situation with a few differences, but let me know if you have any questions or want to run anything by me. Best regards, Rob |
