Did your doctor run this blood test too? "Chromogranin A serum or plasma levels reflect tumor load, and it may be an independent marker of prognosis in patients with midgut carcinoids." I can order the full-text article for you if your are interested. Here is another article: Chromogranin A: its clinical value as marker of neuroendocrine tumours <LINKR rid="fn1" /> The only thing I can suggest re: the NET is to contact the National Institutes of Health in Bethesda MD and see if there is a study that you might fit into. There may be a protocol out there that may be able to identify what you have? You can also do this with any local cancer hospitals too. You symptoms could be related to the NET. What has me wondering is that well... here: "These tumors have the potential for bone metastasis and may be associated with atypical carcinoid syndrome, acromegaly, Cushing disease, other endocrine disease" I am talking with a woman right now who has NET, and her doctor is having her try Octreotide, but if this doesn't work, he is recommending adrenalectomy. In her case, she does have ectopic Cushings that has developed from her NET. I just wanted to encourage you to keep your doctors thinking. ![]() Minnie | 