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CSF leak 4 weeks Post-op?
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From:
![]() ![]() Chris_Wenninger
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HI Minnie – The information that you put together is great. It is also scary to read. I wish that Jason could just be finished
with all of this. I though it was
very interesting to read the study by Barken that showed growth hormone levels
needed to be lower than 5 [mu]g/L to decrease the IGF-1 level enough. The information suggested that it would
need to be below 2.5 [mu]g/L . This is new information to me and will
help me explain to Dr. Maas why she thought Jason was doing well when I kept
saying that his growth hormone levels were too high. This will be information that I take
with us to Jason’s next appointment,<o:p></o:p>
<o:p> </o:p>
I am so worried about Jason.
His forehead is swollen, and the skin on his feet is getting thick. These are classic symptoms of when his
shot wears off. Oh God, please let
me be mistaken in the thought that he is still producing extra growth
hormone. He is supposed to start
college at the end of the month. I
want him to be able to go without this specter hanging over his head.<o:p></o:p>
<o:p> </o:p>
I hope that all of you are doing well – Chris – Ogy’s
Mom<o:p></o:p>
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