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Results of stopping bromocriptine

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From: Hope

Hello:
 
I just wanted to share my experience with my supervised stopping of bromocriptine.
 
Just a little background - I have been taking bromo for 23 years as a result of a very large prolactinoma.
 
The tumor shrunk.
 
In that time I had stopped taking bromo to have 2 kids. 
 
I have recently seen neurosurgeon who told me the now tumor is gone.
 
After that, I had a terrible cold and stopped taking the meds as they stuffed me up even more.  I felt good and asked my endo if I could stop taking it and just have monthly prolactin test to observe the levels.
 
For the last 6 months I have totally stopped bromo. 
 
I felt good until the last month when I noticed that I was becoming increasingly angrier and my weight was slowly increasing (I gained 5 lbs in the six months). 
 
Whenever I received the results of my prolactin the nurse told me it was normal <20.  In my previous experience, I did not feel good at 20....I felt good at 10.
 
Upon visiting my endo, I looked at the actual prolactin numbers  They were:
 
22, 23, 25, 27 and the last one in which I had started the bromo again was 19.  After only 1 1/2 months, I have lost 3 lbs, and feel much less angry.
 
  So I guess in  my experience I can't stop the bromo as I had hoped.   But on the good side,  the side effects from the meds has lessened since I stopped for that six months.  No more stuffy nose, just a little fatique.  I think I can handle the 1 pill for the rest of my life.
 

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