Hello group, I am new here and have already found some really encouraging and interesting information but have a few things i would like to share in the hope that somebody may have some further insight. Firstly, i am from Australia and was wondering if there were any other members from OZ here? Next, I would like to tell you my story, as briefly as possible because it is long, and invite responses to help me with my situation. I am only now being tested for hypopit and prolactinoma after insisting to see and endo and subsequently finding a new GP after the previous one placed me into the 'Too hard and probably a hypochondriac' basket. (There have been many who have done the same) The endo is the one who suggested the above mentioned possibilities and the new GP said to me yesterday "How has nobody put this together before now?' All I can say is thank God there ARE at least a couple of doctors out there who care even a little bit and have a clue. I have been ill for almost 16 years, and the new GP seems to think that this has been the problem all along but it was only after the birth of my son 2 1/2 years ago that things got really bad. Let me run thorugh some of the symptoms that i experience and how i beleive them to be connected, but i would love confirmation or otherwise from other sufferers who have experienced similar or same so that i can really feel as though i am on the right track, finally. I am constantly nauseous, have lost heaps of weight, can barely eat anything (seem to have developed intolerances for almost everyhting which i believe is due to low adrenal function) have trouble sleeping but feel tired to the point of exhaustion all of the time, get very badly dizzy and lightheaded, limbs feel weak, hair and skin are dry and lifeless, not getting periods, have no libido (poor husband is missing out and still loves me but it is certainly a strain!), anxiety, headaches, low blood pressure, always feel cold and can't get warm, leaky breasts (prolactin level about 600), stomache pain, constipation, no energy and feel like my brain is a fog. I know it sounds ridiculous to hope that when i have the CT scan that they find something, but after so many years of this, i have lost all that once was ME, and i just want it back. My life is not a joy an longer but a pretty miserable existance and friends are vanishing along with any hope of being able to work or enjoy simple things. Even a five minute walk leaves me exhausted, dizzy and nauseous. I just want to have a diagnosis of some kind and if this is it,well fabulous, at least there is hope of recovery. Can anybody relate to all of this? experienced similar symptoms? Does there have to be a visible tumour for it to be hypopit? I look forward to reading your replies and thankyou for taking the time to read my story. Kellie from oz |
