Currently seeing Dr. Leland Graves at KUMC, and would love to have other options available. It's not a doctor thing, I know. All I wanted was to talk about what I could expect when the meds did run out, to get an idea of the time frame I was looking at for complications, etc. Have been on Sandostatin for three and half years now and still get a massive headache about an hour before the next dose is due, sometimes two hours... They are debilitating at times to the point that I have no choice but to hibernate in a dark dark room and wait it out. Is this what every minute of every hour of every day will be like when I can no longer get my meds? God, I hope not. Right now I am able to function, to have a life and a job and time with my kids and my family. If that happens I'll lose out on everything... There will no longer be any quality of life. Now, I'm just rambling so.... Later to all and prayers for everyone! | 