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From: MinnieChat

It can take up to 2 years for the steriods from shots to work through your system.
What your doctor can do is order a special urine free cortisol test that can seperate the steriod and possibly identify what kind of steriod is being output in your urine. In this way, he will know if your body is "over" the shots and if your cortisol and acth testing is accurate.
 
You are not producing growth hormone like you should. Even adults produce growth hormone. The testing  seems to indicate that your pituitary is producing GH, but that the body is not converting it to igf-1. I don't know about the other diagnosis, but I do think you need to be seen by an endo that specializes in pituitary diseases, and preferably, one who has an interest in hypopituitary disorders (as demonstrated by your low acth, thyroid, and igf-1). Did the doctor do a MRI of the pituitary?
 
You can check the AACE website for an endo near you. You can call a few of the endos and talk to their nurses, you can see if the doctor has published on pitutiary illnesses, and you could even go to a major endocrine center for a work up.
 
You need an outside opinion. When you see the new doctor, try going in "clean slate" and present your case, and leave the things that have happened before "at home" so the doctor can form his/her independent opinion. Sometimes when too many opinions get in the mix, the doctors can listen too much to opinions and not see what is in front of them.
 
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