----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: DaveStreeter Message 2 in Discussion Hi Jenny, I to have arcomegaly and what a surprize I'm in the same basket as you. I had Surgury in 2004 at UCSF by Dr. Kunwar and I'm currently seeing Dr. Katznelson at Stanford. Both great doctors. I can e-mail them questions anytime and they get back to me within 24 hours. My IFG-1 levels are a little high 245 using a range of 80 to 220. I have tried all the drugs over the last 3 years. Sandostatin worked and lowered my IGF-1 levels down to 137, but the only problem is no matter what drugs I try and always have bad fatigue almost like a dull head ache. Every acromegaly patient is different. I'm currently just started taking Somavert per Dr. K. Your in good hands so keeping moving forward. In my research most acro people still have different issues with the disease but some can find the right treatment to get back on their feet. I think this web site is a great place to hear good stories and keeps your sprits up. If you ever want talk please email me at [EMAIL PROTECTED] Good luck, Dave ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
