----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: hunus Message 42 in Discussion I will share my experience. Around ten years ago I had a migraine that lasted 21 days in a row. I ended up in the hospital. After an MRI they found the pit tumor, also my prolactin was extremely elevated. They got me into surgery right away and I had the tumor removed. They put me on parlodel for my elevated prolactin, and I went home with diabetes insipidous. Within three months the tumor grew back. My endo put me on Dostinex, and it did shrink the tumor. I have had MRI's ever since and there is no visible sign of the tumor. However over the course of the last 8 yrs, alot of my pit functions were going away. It was happening so gradually that I never really noticed a difference until 2 yrs ago. I was having extreme joint and muscle pain, extreme fatigue, short term memory loss, felt like I was walking around in a fog. I was withdrawing from friends and family, and just felt lousy. I really didn't put it together that it was pit related. I was in so much pain, I figured the other symptoms I was having was pain related. I went to doctor after doctor, had many xrays, tried acupuncture. Nothing helped the pain. I have been on a steady stream of muscle relaxers and vicodine. I was let go from my job in January, I kept falling asleep at my desk, I was making mistakes. I just couldn't get it together. Finally, I saw my endo for my yearly check up and told him what had been happening. After lots of labwork, he told me I had no GH, No cortisol, and my thryroid was underactive. I was Hypopit. That was in November. I finally got on GH I have been on it a month, He put me on prednisone for the low cortisol. I'm also on levoxyl for my thyroid. So far I don't feel much different. I see him again in June, I'll have labs done again to make sure I'm even on the right doses. I'm still not working, I couldn't make through an 8 hr day. I have issues driving, I get panic attacks, usually only when I'm driving, so I try to limit my driving. It's been hell. I feel like crap most of the time. But I'm really hopeful the meds will help. I'm not giving up yet. My endo said all of this is a result of having the pit surgery. Quite a chunk of my pituitary was destroyed in surgery. That is why I say get a second opinion. Not all surgeries end badly. But do your homework and get as much info as possible. My pit tumor was so large it had to come out. I wont' do surgery again though. Hopefully the tumor will stay as tiny as it is. I don't know if my surgeon at the time could have avoided destroying most of my pit, I don't have alot of confidence in him, he first diagonsed me with a brain tumor and told me I'd be lucky to make it ten yrs. Scared the hell outta me and my family. He said I would lose all my faculties, and motor skills, Basically i'd be a vegetable. When he realized his mistake, he didn't even apologize to me and my family. His name is Dr. Weiss out of Puyallup, Washington(just incase there are any washingtonians here) Anyhoo I have rambled enough, if you have anymore questions feel free to ask. Keep your chin up, and stay positive. Melissa 8:00? 8:25? 8:40? Find a flick in no time with theYahoo! Search movie showtime shortcut. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
