----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: Gloria Message 3 in Discussion Hi to all I have been having severe headaches at the base of my skull, going on for a long time manageable but now getting worse. When they had found my pit tumor they had also reported cerebral tonsils that were herniating into my spine. I didn't even ask the surgeon about that. I just knew that my pit tumor was an emergency and needed to be taken care of right away. I am now acro free- thank God. My headaches are coming on more frequently and last for months at a time. Most time I can manage but over the Memorial Day weekend I was in a bad way with those headaches. I can tell you that coughing, sneezing, any up and down movement as small as even walking pounds away like gangbuster. Anyway I found out my condition is know as Chiari syndrome. Also found out that acromegalics tend to have Chiari but not all Chiari have acromegaly. I had a wonderful surgeon at Pittsburgh at UPMC for the pit-tumor. I felt like God guided me to him. Now I feel lost again with this other condition. He says it's no big deal if I can't live with it. It's fairly simple to fix. I been on the internet and it is a big deal. I found the Chiari Institute ( on Lond Island in NY) They deal only with Chiari patients from all over the world. They take on patients that have had surgeries prev with no benefit. So now that I went through the delimma with going to Pittsburg( had to travel 5 hrs) and am greatful I did,.. I feel like I should at least got to NY to check them out. The problem is it's a good 10-12hr drive(I don;t like to fly). If I do go ahead and deal with NY, what do I do with any emergencies that might arise later. I just don;t know what to do. I thought my problems were over and I'm having to start all over again. Also found out Chiari Institue uses techniques and monitering of spinal fluid dynamics that are not used anywhere else in the world. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
