----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: PTResearcher2 Message 1 in Discussion I recently saw endos that specialize in parathyroid disease to be evaluated for my elevated CA, ionized CA, & PTH. I had several tests done and both parathyroid and thyroid adenomas were found. Surgery was recommended. My parathyroid/thyroid surgery is scheduled on August 28th. I officially have Multiple Endocrine Neoplasia. I am not sure of the type because of the additional (and unexpected) thyroid adenomas. I am hoping I can have minimally invasive surgery. In 1997, an "incidental" pituitary cyst was found. I never had any of my hormones checked. I had 24/7 migraines. My doctor told me that it was due to "stress." I ignored my symptoms/health for five years. I was diagnosed with a pituitary tumor in April 2002. I tested for 3 1/2 years and was diagnosed with cyclical Cushing's in June 2005. I was unable to schedule the pituitary surgery. My Daddy was diagnosed with colon cancer that fall and I became his primary caregiver. I did not see any endos for two years. I had a laparoscopy in May 2006 and developed gastroparesis (paralyzed stomach.) I couldn't eat for 3 1/2 months and lost 40#s. I still have major digestive problems. My new endo believes that the high calcium is causing my digestive problems. He says they should improve post-op. I would certainly love that! Since I have M.E.N., I will have extensive testing to determine if I have tumors in other endocrine glands such as the pancreas, small intestines, etc. Unfortunately, I am told that this has just begun...even though it started in 1997. It is hard to believe that it has been ten years already. My Daddy had his second liver surgery on June 12th and it went well. Unfortunately, he recently had a 3D CT follow-up and he is not able to have his third liver surgery to remove the cancerous right liver lobe because the liver has not regenerated enough. Daddy's surgeon advised he proceed with chemo asap. Daddy will start chemo again next week. Please keep him in your prayers. This is very difficult for him. It is very difficult for all of us. This has been my summer... I received an inquiry about why someone's post wasn't posted immediately...I am a co-manager of Pit Chat and the past few months have been so hectic that I don't find much time to participate on the boards, although I try to check them once or twice a week. I apologize for the delay in moderating the posts. Minnie is very busy as well and she also has someone close to her with cancer. She is dealing with a lot. She may not be able to post as much as she'd like to. We are here, however, and if you ever have any questions for our management team, please don't hesitate to ask. Thank you. Take care. Meri ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
