----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: liltrubin Message 8 in Discussion <WBR>Dear loki525: My symptoms were all very progressive. It took some time before I became home bound. Basically my docs all said that my symptoms were not related!!! I was having symptoms of inflation and immune system responses in the form of things like daily chronic migraines etc.. I basically started to look at other diseases that had similar symptoms like MS and Chronic Fatigue syndrome and following their suggestions for supplements and nutrition. What really helped me was taking enzymes and believe it or not Celebrex. Celebrex blocks the inflammatory response and it was starting to work well for me. I personally cannot wait to go back on it!!!! I can take anti-inflammatory meds again on Thurs., just counting down the hours-:) Hang in there!!!! Take the high GH out of the picture and start looking at the symptoms or pain etc.. you will start to find the answers. It is not fun when the answers should be at the tips of the docs tongues and you have to the work-:) HUGS, Tina loki525 -----Original Message----- From: loki525 <[EMAIL PROTECTED]> To: Pituitary Chat <[email protected]> Sent: Sun, 23 Sep 2007 12:47 pm Subject: Re: Sandostatin LAR ----------------------------------------------------------- New Message on Pituitary Chat ----------------------------------------------------------- From: loki525 Message 6 in Discussion I would like to add a question to my above post. As I mentioned, since I was diagnosed and began treatment last January, all of my signs and symptoms have become much worse. About the only improvement I've experienced is that my IGF levels have fallen from the 800 to 600 range and my dose has since been increased to 30 mgs a month. Otherwise, my fatigue, depression, joint and muscle pain and back pain have all increased to the point that I don't know how much longer I'm going to be able to work before my surgery. Has anyone else experienced this and was anything helpful? My docs say they want to check my levels again and then perhaps try another medication. I'm really running out of time before I just curl up into a little ball and stop living. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED] Email and AIM finally together. You've gotta check out free AOL Mail!<br/> ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
