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New Message on Pituitary Chat

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From: liltrubin
Message 2 in Discussion


Dear Jeff:
 
God bless you! I cannot comment on your questions as my tumor was only 8mm 
but as far as your long journey for treatment, have you considered things like 
books on tape, every now and again asking a friend or family member go with 
you, 
things of that nature so you are not alone in this? I cannot even imagine!!!! 

 
HUGS,
 
Tina
If a 
cluttered desk is a sign of a cluttered mind, of what, then, is an empty desk? 
Albert Einstein



 

In a message dated 12/16/2007 9:30:08 P.M. US Mountain Standard Time, 
[email protected] writes:
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New 
  Message on Pituitary 
  Chat

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From: 
  JB5757
Message 1 in Discussion

Hi All -
My June 07 surgery for my 
  4.7 cm (big) non-func. adenoma was seamless and easy (endonasal, 
  transsphenoidal).  However, the 20% the surgeon couldn't get was wrapped 
  around my carotid arteries on both sides so I'm now in the midst of 3D 
  Conformal radiation (5400 cgys total). 

I'd like to hear other's 
  experiences with this.  I'm having a really hard time with some fatigue, 
  anxiety, upset stomach, spaci-ness. I can see some of the radiation, taste 
it, 
  etc... It's just very bizzare as the linear accel. cranks up and then 
  dispenses the radiation to my head! 

I also am going to UCSF which is 
  80 miles away and the solitude of driving and treatment is getting to 
  me.

Thanks for reading. 
  Jeff

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