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New Message on Pituitary Chat
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From: Willard1H
Message 1 in Discussion
I posted this in "Prolactinoma" but I think it may interest all of you!
From: <NOBR>Willard1H</NOBR> (Original Message) Hi, everyone. We at
Pituitary Chat get so technical sometimes, describing medications, anatomical
features, and all the measures we take to try to survive our tumors. It's great
to talk with others who share this, who know what we're talking about. I'm
writing a blog, Brain Tumor: First Person, that tells my tumor experiences for
general readers, those who don't have a clue as to what it's like. They're
sympathetic, but it's entirely alien to them. Of course, you're all welcome to
vist and Comment. You're family. Diagnosed in Nov. 2007, I've been journaling
from the beginning -- my first MRI of this huge 5cm Prolactinoma (prolactin
level 12,840!), the initial clinic appointments, diagnosis, and now all the
weird symptoms I suffer. Next month I have my first checkup after starting
Dostinex. You hear about it as it happens! Lately I've been writing hefty
entries about my general good health, a Q & A, Phantom Smells, Poor Short Term
Memory (mostly names), Faith in My Religon, Aspartame, "50 First Dates," Double
Vision, Bad Falls, No Fear of Death, and Being a Survivor. It can get
colorful. There's room for me to insert pictures, charts, cartoons, and links
to blogs with similar topics. There are over a dozen links to more "official"
brain tumor web pages (ABTA, NBTA, Pituitary adenoma in Wikipedia, the Mayo, a
BT symptoms survey, and lots of resources, such as books, etc.) Since I've
only known about my tumor for three months, you might grin over how naive I can
be, about topics that are old news to you. Maybe it'll bring back some of the
early days when you first found out. Or perhaps you'll like the "first person"
anecdotes in my journal. I hope all the resource links will be valuable to you.
Come by and see me! Willard, in Alabama
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