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New Message on Pituitary Chat

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From: Willard1H
Message 1 in Discussion

Hi, everyone.    We at Pituitary Chat get so technical sometimes, describing 
medications, anatomical features, and all the measures we take to try to 
survive our tumors. It's great to talk with others who share this, who know 
what we're talking about.   I'm writing a blog, Brain Tumor: First Person, that 
tells my tumor experiences for general readers, those who don't have a clue as 
to what it's like. They're sympathetic, but it's entirely alien to them. Of 
course, you're all welcome to vist and Comment. You're family.   Diagnosed in 
Nov. 2007, I've been journaling from the beginning -- my first MRI of this huge 
5cm Prolactinoma (prolactin level 12,840!), the initial clinic appointments, 
diagnosis, and now all the weird symptoms I suffer. Next month I have my first 
checkup after starting Dostinex. You hear about it as it happens!    Lately 
I've been writing hefty entries about my general good health, a Q & A, Phantom 
Smells, Poor Short Term Memory (mostly names), Faith in My Religon, Aspartame, 
"50 First Dates," Double Vision, Bad Falls, No Fear of Death, and Being a 
Survivor.   It can get colorful.  There's room for me to insert pictures, 
charts, cartoons, and links to blogs with similar topics. There are over a 
dozen links to more "official" brain tumor web pages (ABTA, NBTA, Pituitary 
adenoma in Wikipedia, the Mayo, a BT symptoms survey, and lots of resources, 
such as books, etc.)   Since I've only known about my tumor for three months, 
you might grin over how naive I can be, about topics that are old news to you. 
Maybe it'll bring back some of the early days when you first found out. Or 
perhaps you'll like the "first person" anecdotes in my journal. I hope all the 
resource links will be valuable to you.   Come by and see me!    Willard, in 
Alabama

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