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From: ChiaChoctaw
Message 2 in Discussion
My husband had fat removed from his abdomen also. They
said it was to prevent spinal fluid leakage. We kid him that he is now
truly a "fat head". I don't know where the packing is. It may be at
the point of entry through his sphenoid sinuses b/c he had the same surgery as
yours. This would make sense, since they wouldn't want fluid leaking out
of the incision. They have different methods now...some use a mesh like
packing, I think. It was referenced it on his reports about them
seeing the packing...hang on and I will read some..Ok...couldn't find the
report
I was looking for. When I find it, I will write it here for you. I
would just wait until the doctor's visit. I wonder about your prolactin
levels. My hubby's was like 12,000 or something.
Best of luck, and if I find that report, I'll let you
know.
Beka
----- Original Message -----
From:
Katprego
To: Pituitary Chat
Sent: Thursday, April 24, 2008 3:12
PM
Subject: malpractice? post
transsphenoidal surgery?
New Message on Pituitary
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malpractice? post transsphenoidal surgery?
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Message 1 in
Discussion
From: Katprego
OK, here is an update on the MRI scan post
transsphenoidal surgery.10/7/2007
Original size 1.5 cm X 0.8mm
<o:p></o:p>
After surgery the rad report states, 0.8mm tumor
<o:p></o:p>
And Surgical Packing in the Sphenoid Sinus Cavity
.
excuse me?
<o:p></o:p>
On the last note I contacted my ENT office and was
advised she would contact the other office where the doctor was
to deliver the message. Message was. Why is there packing in
the
Sphenoid Sinus Cavity? Well wouldnt you know that the nurse
called me back within 30 minutes and asked me whats going on.
I
told her recent MRI shows packing in the sphenoid sinus cavity.
She states how do I know. I said the Radiologist states it is
there. She asked if I had talked with Neuro DOC I said I
places a phone call into the office and havent heard back
(still havent). She said well you have an appointment Tuesday
at 11:30 bring MRI films and report and the Doc will talk to
you
about it. OK. #1 if it was suppose to be there wouldnt she
just
tell me that? So today I contacted a Friend at the hospital
where the surgery was done and asked for a favor to get the
Operative Notes today vs. 7-10 business days, went on lunch to
grab it and NO WHERE is the two reports it states anything was
left placed or what have you to my sphenoid sinus cavity. It
does state they accessed it to get to the Pituitary gland. .
. I read and re-read the reports for
the last 3 hours and nothing. I even googled words like
3-Vircyl Which is the suture he placed on the cut from my
abdomen. The fat he took from the stomach was placed into the
seller where the tumor was.
Im scared of what is in there. So I have a phone call into one of the
radiologists I used to work for to review the
films.
<o:p></o:p>
Oh! When I got home from the doctors office I tried
doing internet research about the packing left in the sinus
cavity. I stumbled upon this Neuro doc from the <st1:place
w:st="on"><st1:PlaceType
w:st="on">University</st1:PlaceType> of
<st1:PlaceName
w:st="on">Florida</st1:PlaceName></st1:place>. He
had a web page from the college site about the Surgery. This
particular one. And how he doesnt use packing cause it isnt
necessary. I sent him an email asking if the packing would be
typical surgical procedure and gave him the details of my tumor
size prior and post surgery told him the type of tumor
(prolactinoma) and left my phone number. You know it took 2
minutes for him to call me! 2 minutes. He is a doctor for the
hospital Shands and started talking with me about the packing
told me not to worry quite so much about it states every doctor
closes up differently and to keep my appointment with him. He
then said that I should concentrate on the size of the tumor
now. He said that it should be that large post surgery and
suggested I follow-up with my Neuro. He then asked me if I was
sure it was a Prolactinoma. I said yes thats what theyve been
telling me for 4 years now. He asked how my levels were now, I
said 17. He said thats great thats normal. I said my levels
were only 33 when I was diagnosed. He said thats normal too. I
dont think with those levels it is a Prolactinoma. Typically
levels start at 100s to 1,000s for Prolactin. What!!!? So. He
said after I talk with my Neuro and I am not satisfied with the
answers to call him and he will take me as a patient for a
2nd opinion. Great huh! FLORIDA'S HEALTH CARE IS
APPAULING
<o:p> </o:p>
So, I am left with three unanswered questions; What the
heck is in my Sphenoid sinus cavity, What kind of tumor do I
really have and how come it is so big still?
oh and the headaches are coming back....
yeah!<o:p></o:p>
<o:p></o:p>
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