----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: liltrubin Message 3 in Discussion I just had a conversation with my ENT who re-read a scan I just had done because he said many Radiologists cannot tell the difference between fat grafts and other issues. In my case it was noted as opaque which means that it is a chronic sinus condition in the Spheniod sinuses which would require further surgery to clean it out. When the ENT looked at it he was like no that is just the fat graft. They have to go through your spheniod sinuses to get to the pit gland and they have to pack that up. I would guess it is the fat graft. They can title fat graft as packing because that is what it is...packing. I hear that your very scared and upset would be an understatement but when the medical community terms something it may mean something else in the general population. In your case it might be packing means fat graft. I hope that helps a tad!!!! Let us know what the Doc says when you hear back!!!! HUGS, Tina On Thu, Apr 24, 2008 at 1:12 PM, Katprego <[EMAIL PROTECTED]> wrote: New Message on Pituitary Chat malpractice? post transsphenoidal surgery? Reply Reply to Sender Recommend Message 1 in Discussion From: Katprego OK, here is an update on the MRI scan post transsphenoidal surgery.10/7/2007 Original size 1.5 cm X 0.8mm <o:p></o:p> After surgery the rad report states, 0.8mm tumor <o:p></o:p> And Surgical Packing in the Sphenoid Sinus Cavity . excuse me? <o:p></o:p> On the last note I contacted my ENT office and was advised she would contact the other office where the doctor was to deliver the message. Message was. Why is there packing in the Sphenoid Sinus Cavity? Well wouldn't you know that the nurse called me back within 30 minutes and asked me what's going on. I told her recent MRI shows packing in the sphenoid sinus cavity. She states how do I know. I said the Radiologist states it is there. She asked if I had talked with Neuro DOC I said I places a phone call into the office and haven't heard back (still haven't). She said well you have an appointment Tuesday at 11:30 bring MRI films and report and the Doc will talk to you about it. OK. #1 if it was suppose to be there wouldn't she just tell me that? So today I contacted a Friend at the hospital where the surgery was done and asked for a favor to get the Operative Notes today vs. 7-10 business days, went on lunch to grab it and NO WHERE is the two reports it states anything was left placed or what have you to my sphenoid sinus cavity. It does state they accessed it to get to the Pituitary gland. . . I read and re-read the reports for the last 3 hours and nothing. I even googled words like 3-Vircyl Which is the suture he placed on the cut from my abdomen. The fat he took from the stomach was placed into the seller where the tumor was. I'm scared of what is in there. So I have a phone call into one of the radiologists I used to work for to review the films. <o:p></o:p> Oh! When I got home from the doctor's office I tried doing internet research about the packing left in the sinus cavity. I stumbled upon this Neuro doc from the <st1:place w:st="on"><st1:PlaceType w:st="on">University</st1:PlaceType> of <st1:PlaceName w:st="on">Florida</st1:PlaceName></st1:place>. He had a web page from the college site about the Surgery. This particular one. And how he doesn't use packing cause it isn't necessary. I sent him an email asking if the packing would be typical surgical procedure and gave him the details of my tumor size prior and post surgery told him the type of tumor (prolactinoma) and left my phone number. You know it took 2 minutes for him to call me! 2 minutes. He is a doctor for the hospital Shands and started talking with me about the packing told me not to worry quite so much about it states every doctor closes up differently and to keep my appointment with him. He then said that I should concentrate on the size of the tumor now. He said that it should be that large post surgery and suggested I follow-up with my Neuro. He then asked me if I was sure it was a Prolactinoma. I said yes that's what they've been telling me for 4 years now. He asked how my levels were now, I said 17. He said that's great that's normal. I said my levels were only 33 when I was diagnosed. He said that's normal too. I don't think with those levels it is a Prolactinoma. Typically levels start at 100's to 1,000's for Prolactin. What!!!? So. He said after I talk with my Neuro and I am not satisfied with the answers to call him and he will take me as a patient for a 2nd opinion. Great huh! FLORIDA'S HEALTH CARE IS APPAULING <o:p> </o:p> So, I am left with three unanswered questions; What the heck is in my Sphenoid sinus cavity, What kind of tumor do I really have and how come it is so big still? oh and the headaches are coming back.... yeah!<o:p></o:p> <o:p></o:p> View other groups in this category. To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. Need help? If you've forgotten your password, please go to Passport Member Services. For other questions or feedback, go to our Contact Us page. If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. 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