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New Message on Pituitary Chat

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From: Willard1H
Message 2 in Discussion

Ailie,   None of us could tell you if you have any type of tumor. Not even a 
qualified medical doctor would diagnose you over a message board!    Want an 
opinion? My suspicion would be "Yes"  -- you have many of the symptoms I had. I 
also had double vision and a few others. I dunno what kind of specialist you're 
seeing tomorrow, but I hope you have an endocrinologist meeting in your near 
future.   Like you, "my prolactin levels were through the roof" and that's how 
my endo diagnosed a macroprolactinoma after seeing the MRI. Be aware that an 
endocrine lab's blood tests are much more sophisticated than tests available to 
most GPs.   A word of advice: DON'T WORRY. You can tell from many of the Board 
topics that some of us do have serious problems with our tumors. But worrying 
won't help. If you get a clean bill of health, you worried for nothing. If a 
tumor is diagnosed, you may be able to more calmly deal with it if you haven't 
uselessly worried.   If you have a prolactinoma, your prognosis is encouraging. 
Very few people die from such a treatable tumor. They're generally benign, and 
the usual drugs show dramatic results. My neurosurgeon said if his own brother 
had a tumor, he would hope it would be a pituitary prolactinoma.   Let us know 
as soon as you have something to report. It helps tremendously to share our 
problems with people who have experienced the same things.    I hope you don't 
have a tumor. But if you do, be assured that we're here for you.   Willard

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