----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: PT3688041 Message 2 in Discussion I have acromegaly. I had transspenoidal surgery in December 2004. Unfortunately, my tumor had grown into the cavernous sinus and they were unable to remove all of it. initially, they were unable to visualize the tumor on MRI but as my IGF-1 continued to be elevated it was obvious that tumor cells was still there and active. I was unable tolerate sandostatin but controlled my levels with somavert. The plan was to have cyberknife when the tumor grew enough to be visible on the MRI and provide a target for the radiation. It fiinally showed up last year (NOTE: The local neuroradiologist misread the MRIand the tumor had actually be visible on the MRI for 6 months!!!! The neuroendocrinologist and neurosurgeon at the pituitary center caught the error. Make sure that whoever is interpreting your test results know what they are doing) I had cyberknife last August. My IGF-1 levels (which are a reflection of GH production) have been decreasing. It was my understanding that if you zap the tumor it will decrease production of growth hormone. This is apparently happening in my case. It does take time. I have been able to reduce my somavert from 30 mg daily to 20 mg every 3rd day so something is happening. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
