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New Message on Pituitary Chat
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From: ozny_1
Message 4 in Discussion
I think you at least give the cabergoline a chance to work,In my case the
prolactine level was 15.000 , my Endo put me on the medication and also he
recomended not to go with the surgery first.
Now 3 years later still on the Med my prolactine is at 24. and the tumor
size is less by almost 80%.
When i first started taking the cabergoline i felt so sleepy all the time
,had no energy and was getting angry so fast( I think that happens as your
system gets adjusted to the Meds ) .
now I don't notice any side effect what so ever.
Good luck.
In a message dated 7/18/2008 9:19:25 P.M. Eastern Daylight Time,
[EMAIL PROTECTED] writes:
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New
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From:
ChiaChoctaw
Message 2 in Discussion
I think you should look at
the rate of success w/
surgery. They really tried to scare us when
my husband had his tumor and
unable at the time to find any info on pit.
tumors, we did what they said.
When residual tumor was left behind
and secreted just as much prolactin as the
original tumor, we were "then"
told, that you can almost never get it all and
that radiation after
surgery and meds were our next steps. If even a few
cells are left
behind, you can have growth of the tumor and side effects, not to
mention
that they told us afterward that even w/ the camera, it is virtually
impossible to tell the tumor from the pit. gland itself and that they
don't want
to harm the pit gland or there will be replacement meds
forever! So, my
suggestion is to ask a/b what chances of no tumor
left behind and if they tell
you that you probably will have tumor left
and be on meds anyway...I would find
out why they want to do surgery and
risk the trauma etc. Maybe it is in a
dangerous area? Maybe
has a cystic component??? Ask lots of
questions and remember that
surgeons don't get paid unless people have
surgery.
----- Original Message -----
From:
ksherman433
To: Pituitary Chat
Sent: Thursday, July 10, 2008 6:10
PM
Subject: Surgery vs Medicine
New
Message on Pituitary
Chat
Surgery
vs Medicine
Reply
Reply
to Sender Recommend
Message 1 in
Discussion
From: ksherman433
I don't know
what to do--my PCP thinks I should have my
prolactinoma removed, but my endo says "you don't
want people
messing in your brain" and wants me to stick with the medicine.
I've only been on it for a
few weeks and it feels like an
eternity--I feel like a crazy person sometimes. I get confused,
forgetful, dizzy
as all get out. I suspect people I work with
(most don't know about the tumor) think I can't do
my job. On
one
hand if the cabergoline I'm on works well and gets rid of
the tumor, then I suppose I can
handle being miserable for a few
months or so. On the other hand, the idea of getting surgery and
having the whole
thing gone and done with sounds pretty
attractive about now. I understand there are risks, but
they
seem pretty
rare. I just don't know what to do at this
point.
For those of you who have had surgery, what finally helped
you make the
decision? I've got a 6mm tumor, so it's not huge
but it's not exactly nothing either....my
husband hasn't been
too helpful in helping me make a decision, and I would like to
hear about it from
someone who KNOWS WHAT I'M TALKING ABOUT,
someone who knows what I'm
feeling.
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category.
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