On data trustees, I think a really good example is Midata
<https://www.midata.coop/en/home/>, which serves as data trustee for health
data. It's a nonprofit, with a cooperative governance structure, based on a
Swiss legal framework. But they help set up similar structures in other
countries and they were founded by well respected researchers. (full
disclosure: I consulted with them for a bit before starting my work at WMF.)

Best,
Jan



On Fri, May 15, 2020 at 7:54 AM Luis Villa <[email protected]> wrote:

> On Fri, May 15, 2020 at 12:01 AM Dimitar Parvanov Dimitrov <
> [email protected]> wrote:
>
>> On data trustees: The idea is that citizens should be able to donate
>> their data (including private data in some cases) for the public good. This
>> should be handled by some entity that can guarantee safe and respectful
>> reuse of that data and for it to be used really for the public good and not
>> for private profit.
>>
>> But while it would be good to have such an animal, there are no clear
>> ideas on how to set it up, who should run it and how it should operate.
>>
>
> There’s a lot of ideas, maybe no best practices? Happy to introduce anyone
> interested here to Sean McDonald, who has written a lot on this and is
> interested in/big fan of Wikipedia (though I think not an editor?)
>
> https://www.cigionline.org/person/sean-mcdonald
>
> Real world example from, of all people, Facebook:
>
> https://www.americanbar.org/groups/business_law/publications/blt/2020/01/purpose-trust/
>
> FWIW!
> Luis
>
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