I'm not getting a suprapubic. I'm having a procedure where I can cath
through my belly. It's no bag or tube. I just will be able to cath through
my belly. No more crap hooked to me. I have had the folley for the
most part of the 3 and a half years I have been in the chair. Self cathing
wasn't working out for me because I was having leaking problems even after a
bunch of medicaion. I was up to oxybutin 3 times a day and still having
issues.
Stacy
"People who hate you do not win unless you hate them. Then you destroy
yourself"
----- Original Message -----
Sent: Monday, September 06, 2004 7:22
PM
Subject: Re: Fw: Re: [QUAD-L] hello
every1!
After my urinary diversion (Indiana pouch) I began to leak
during transfers
unless I had just cathed. It became more of a
problem and eventually had to
have the urethra (?) closed. It was
strange to have that done, but my
urologist said "most people have just one
entry to their bladder anyway!".
In my mind it still felt funny tho, and I
make "sure" when I'm in the
hospital that they know ''where" to get to my
bladder! Sometimes they look
at my stoma (hole) and say "that
little thing?" And of course there are the
nurses that have not read
my chart but know I need to be cathed and come in
prepared todo it the
"regular" way! All I can say is--its a good thing I
can
talk!!
take
care,
Dana and ?
[EMAIL PROTECTED]
----- Original
Message -----
From: "Jerre Dowty" <[EMAIL PROTECTED]>
To:
"Quadlist" <[EMAIL PROTECTED]>; "Stacy
Harim"
<[EMAIL PROTECTED]>
Sent:
Monday, September 06, 2004 12:21 PM
Subject: Re: Fw: Re: [QUAD-L] hello
every1!
Hello All...thought I would share my latest
hospital adventure! First, I
had an ultrasound of my kidneys and
bladder then an x-ray of the same. Then
my Urologist scheduled me for
surgery last Thursday. It was for a
cyststoscopy and a bladder biopsy
for bladder cancer. It was all suppose to
be the usual and just day
surgery. Once they got inside of me they found I
had bladder
stones. It turned a 30 minute procedure into 2 hours. I
had
never even heard of bladder stones. They told me there were "a
bunch" of
them. When I asked the doc if he could put that into
numbers he said I had
somewhere between 50 and 100. He said removing
all of them should increase
my bladder capacity considerably. They
were sent to pathology along with
the biopsy. He said I would
probably have to have this every couple of
years.
I ended up having
to stay overnight for monitoring and they pumped me full
of I.V.
antibiotics. They sent me home with more antibiotics (Cipro) and
some
pain meds. It wasn't too painful but I felt I had been karate
kicked
in the bladder. It is better now but still a little
uncomfortable.
Stacy, did your Urologist approve the suprapubic?
How long have you had
your Foley? I have had mine 9 years but was
told that as a female long time
Foley I would leak urine from my bladder
with a suprapubic. Anybody have
any info on this? Any females
out there have them after having a Foley for
a long
time?
Jerre
-------Original Message-------
From: Stacy
Harim
Date: 08/31/04 03:45:41
To: Sherri Seymore
Subject: Re:
[QUAD-L] hello every1!
No, you're still young at 52. It's never
too late. I'm seeing my Urologist
at John's Hopkins so I should get
the best advice. I would love the
Mithirof, but I don't think
insurance will cover it. It's when you cath
through your belly
button. I'm going on Wed. so I will let you know. If
you don't
hear from me it's either because I forgot or I will most likely
tell the
quad list. Good luck with everything and I would love to know how
it
goes.
Stacy
"People who hate you do not win unless you hate them.
Then you destroy
yourself"
----- Original Message -----
From: Sherri
Seymore
To: Stacy Harim
Sent: Monday, August 30, 2004 6:29
PM
Subject: Re: [QUAD-L] hello every1!
Hi Stacy! Sounds
like you have got a busy schedule. I am seeing my
Urologist and
having all the tests done ( KUB, ultrasound of kidneys,
bladder,
etc.) He's waiting these results before scheduling day surgery.
I
am having problems with my Folley. If you don't mind sharing info,
I'd be
real interested in what your Urologist suggests as I was told that
a
superpubric was not a good idea for a female who has had a Folley for a
long
time and I've had mine 9 years. How long have you had
yours?
I hope all goes well for you with your doctor appointments and
starting
school. I admire you for taking on so much! At 52, I
guess I'm just too
old!
Jerre
Lady Quad in Texas
-----
Original Message -----
From: "Stacy Harim" <[EMAIL PROTECTED]>
To:
"quadlist" <[EMAIL PROTECTED]>; "Roberta
McCafferty"
<[EMAIL PROTECTED]>
Sent:
Sunday, August 29, 2004 9:33 PM
Subject: Re: [QUAD-L] hello
every1!
I'm glad to see you posting again. I know what you mean
about the sun. I've
been trying to get the last bit of color I can,
although I don't have a pool
like you, I still took advantage of the
sunshine. It's much easier when the
weather is not so damn hot.
School is starting the 8th, but I have a
surgery Monday, orientation for my
online classes and rehab doc. apt. Tues.,
Wed., the Neurologist and
Urologist to see about getting rid of the folley.
Hopefully the weather is
great for my couple of day break, because primary
doc apt. the 7th, and
then finally classes start the 8th. My online classes
are already
loaded so I will probably get a head start on those so I don't
repeat last
semesters mistakes by getting behind. At least time goes by
quicker
when I am busy and helps keep my mind off of Mike. I'm having a
bit
of a hard time getting over him. Anyhow, sorry for the rambling,
glad to
see you sticking around.
Stacy
Stacy
"People who
hate you do not win unless you hate them. Then you
destroy
yourself"
----- Original Message -----
From:
Roberta McCafferty<mailto:[EMAIL PROTECTED]>
To: quadlist<mailto:[EMAIL PROTECTED]>
Sent: Saturday, August 28, 2004 12:01 PM
Subject: [QUAD-L] hello
every1!
hello every1,
Hope everyone is well!
Have been outside enjoying the sun! Have to do it
now before summer
is over, lol. Sorry, once again that it has taken me a
little while
to reply. But I have, now. I will start posting more.
Well,
every1 have a great day!
Tony- I will take the position
as tanning adviser to the presidente! Hope
u did not give it away , yet!
Happy belated birthday!! Nice pic whoever
posted it, lol. Glad to
hear that you made it through the Hurricanes, well.
Dave- My car
accident was January 4th of 1998. Glad to see that your
doing
good!
Stuntman- I know you did not forget I was just playing.
Hope things are
going better.
Smurf- So glad to hear that
everything is going well with your new
sweetiei! I wish you the best of
luck.
Peace always,
Birdie
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