The pending Christopher Reeve Paralysis Act, for which he advocated, has 4 titles or parts.  Title III addresses care = improvement of quality of life and long term health status.  http://www.christopherreeve.org/hopenetwork/hopenetwork.cfm?ID=504&c=68
Jerry 
Title III Improving Quality of Life for Persons with Paralysis and Other Physical Disabilities: Authorizes the Secretary of Health and Human Services, acting through the Centers for Disease Control and Prevention, to implement projects and interventions to improve the quality of life and long-term health status of persons with paralysis and other physical disabilities, including:
  • Developing a National Paralysis and Physical Disability Action Plan in partnership with voluntary health and disability organizations; 
  • Developing comprehensive and innovative programs, services and demonstrations within existing State-based disability and health programs of the CDC, which are designed to support and advance quality of life for persons with paralysis and other physical disabilities; 
  • Establishing a paralysis registry to support surveillance for research, education and quality of life purposes; and 
  • Providing grants to non-profit private health and disability organizations to coordinate existing state services with State-based paralysis and physical disability programs; disseminate information to the public; improve access to services and test model intervention programs to improve quality of life.
----- Original Message -----
Sent: Tuesday, October 12, 2004 2:04 AM
Subject: Re: [QUAD-L] Christopher Reeves / Go ahead yell at me now

I don�t think this is a time that we should be arguing about Christopher Reeve's intentions.  I'm sure his foundation that has raised millions of dollars would argue with you.
Stacy
 
"People who hate you do not win unless you hate them. Then you destroy yourself"
----- Original Message -----
Sent: Monday, October 11, 2004 11:25 AM
Subject: [QUAD-L] Christopher Reeves / Go ahead yell at me now

I am sorry for his family's loss, sorry for his untimely accident and death.

I may be in the minority, but I don't remember one interview that he
advocated putting money into research for the existing quads as
far as the betterment of our care.

Every time I saw him interviewed, it was "a cure for him" and I applaud him
for that.

The truth is that someday there may be a cure, but I am not sitting around
focusing on that cure.

I am living my life to the fullest and enjoying all the things I can. I enjoy
the blue sky, the turning of the leaves in autumn, the first crocus flowers
to appear in spring, the big beautiful Monarch
Butterfly........................................

Yes, if I would have unlimited funds, I may have started therapy 3-4 hours
per day, but look what he missed out on.

OK, go ahead....YELL!

GA

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