When my insurance stopped paying for nursing we had less than 1 month notice. It took 6 months before I got on medicare/medicaid to get some home nursing care. My mom had to quit her job and did ALL my care during those months. I would stay at my computer while my mom got some sleep. I would play an alarm sound on my computer to wake her up. We had hospice nurses for a few hours per week so my mom got some breaks. Even now I have night nurses but my mom does most of my care.
In the movie, I wondered how she was moving her chair. Glad they mentioned the tongue control, I had forgotten about that. In case anyone is interested, it's made by Newabilities Systems Inc. http://www.newabilities.com/
Jim
At 09:55 AM 10/26/2004, [EMAIL PROTECTED] wrote:
Hi All,
I thought when I signed on to read posts from the q-list, that it would be dominated by the Brook Ellison movie. I was EXTREMELY touched by the movie, and was impressed how a vent quad was depicted. Even though I'm C 5,6 I got a better perspective of how much more challenging it is with a higher level SCI.
It also flooded me with memories of my family, how each adjusted in their own way and time. And when they showed the seen when she first entered the rehab, WOW did THAT bring back emotions of 31 years ago.
Yes, it did make the mom look as though she did EVERYTHING herself for ALL those years, which WE all know is quite impossible. But over all, I loved the movie.
What did all you think, that saw it, of how it was portrayed? Did it bring back memories for any of you guys?
Bobbie
Jim Lubin
[EMAIL PROTECTED]
Bothell, WA, USA
http://makoa.org/jim
disAbility Resources: http://www.makoa.org
Transverse Myelitis Association: http://www.myelitis.org/HowToHelp
