| message dated 10/11/2004 00:10:49 GMT Standard Time, [EMAIL PROTECTED] writes:
Hi, My name is Cevi. I am 21 years old. I was in a near fatal car
accident in 99. I had several areas of trauma. I crushed C-1 and C-
5, shattered C-7, fractured T-1 and T-2. I lost my spleen and a
kidney. I am a partial quad. Right now I am dealing with
syringomyelia. I am looking for support and to learn about resources
for this condition.
Welcome Cevi!
I'm a C4-5 Complete quad of 25 yrs. I was 15 when my auto accident occurred. I was diagnosed with SM in 1994 after 5 yrs of odd symptoms. THEN I'd never heard of the condition! I got 3 opinions and chose, unforseeingly, a real ass of a neurosurgeon. I had a shunt put in. It failed. It was revised and put in my pleural (lung) cavity. My syrinx collapsed but, over time, bad pain is where the shunt is. It seems to be muscular however mostly.
Having POST TRAUMATIC syringomyelia is rare. Supposedly only 3% of the quad population acquires it but now with MRIs ... more are finding they have it but not a lot. IT can make paralysis a sweet smelling rose.
There is a national organization for it but I found most members have the congenital version of it. Still, it's a resource - http://www.asap.org/
Craig hospital in CO is the biggest spinal cord injury hospital & rehab center in America. They are very up on SM too.
Keep with this group for great info (and fist fights too!)
Lori | 
