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That is what I want...the cuddling, kissing, holding at night. Even though I have those sensations, I don't care if I can't have the above.  that is what counts.  You are fortunate to have someone to love and love you back.
 
Stacy
----- Original Message -----
Sent: Saturday, January 01, 2005 12:56 AM
Subject: Re: [QUAD-L] Frustration

I've been following this thread for a while now.  I find it curious how things work out - I have had full sensation with very little motor function since 1967.  I've had a full life with lots of sensations and now I'm at the point where the thrill is gone and although I fantasize how good it would be with a 'new' woman, I will not compromise what I have now for a fling.  My wife of 31 years is experiencing diminished desires because of lupus, arthritis, and fibro myalgia and I find going uncathed always results in a big mess.  We are at the point now where just getting up daily and functioning 'normally' is a large accomplishment.  Everything we do as far as regular daily activities is about all we can manage.  We do hug, kiss, and cuddle at night, but a good night's sleep is pretty high on our list of pleasures.  (And a good dump is a close second.)  The sex act served it's purposes of making us close and procreating the species, but now it has become more of a burden than a pleasure.  (There are a few parts of procreating that bring more pain than pleasure - it's not all roses.  Skipping it isn't such a loss as you might imagine. )  I think I can understand the frustration of feeling incomplete as far as enjoying  God's primary directive, and for that I truly grieve with you.  If you have ever tried an illegal drug and decided that no matter how great it felt, you just couldn't keep going there because it wasn't normal for you, having and losing sex is a similar loss.  I am truly grateful for all you great friends here on the qlist who have taught me, more than you will ever know.
God bless, and have a great '05.
Dave
 
 
 
 
 
 
In a message dated 12/31/2004 9:07:41 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes:
I do have those feelings yes. I don't understand it though because I don't have feeling in my legs, but I do in those areas. I'm not sure to what extent because I haven't 'been' with anyone since I got sick. Of course I have experimented, but don't really have any desire to and I think when or at this rate if I am with anyone, that is when I will know.   I do  have a sore on the bottom of my foot and that hurts me as well.  I don't get it.  My doctor said that the nerves to your pelvic area are the most protected on the spine so if I were to feel anywhere, it would be there.  I do get sporadic sensations on my legs but never in the same places all the time.  My doctor also told me that with my disease, it makes things very strange.  No SCI is the same, but I am very much different because of the way it happened.  I don't know if I ever explained it but my spine is very atrophied because of the disease and the damage left over from the inflammation the spine is still very much intact.  I still sweat below my injury level, but the swelling is quite bad and I have more spasticity than most spinal cord patients.
 
I'm having a hard time going through the holidays single. Most of my friends are married and/or have children.  I don't have hardly any family and didn't have them here for Christmas and now alone for New Years.  I find myself very left out because I donât have anyone.  One of my best friends pretty much only does things with other couples.  Like going out to dinner, playing cards, etc.  She helps me through the waiver program, so the time we spend together is when she is here helping me out with something.  She just got in an accident and her car got totaled plus she got a broken arm.  I can't get into her new car because it's too low and awkward to transfer out of, so we don't really do anything together anymore.  It's been difficult getting through the holidays and will be glad when they are over.  I'm just not looking forward to the next 6 weeks while everyone is making their valentines day arrangements.
 
I am happy that everything is going well for you and Steve.  When the time is right, everything will happen naturally.  It's wonderful that he isn't pushing you into anything you are not ready to do.  Keep taking it slow.
 
Sorry for the book,
Stacy
----- Original Message -----
Sent: Thursday, December 30, 2004 5:05 PM
Subject: Re: [QUAD-L] Frustration

In a message dated 21/12/2004 04:17:36 GMT Standard Time, [EMAIL PROTECTED] writes:
I did think about going to that step, but I wasn't fixated on it.  I was content just having the closeness at the time.  It's the hugging, kissing, and cuddling that I miss so much instead of the act itself. 
Hi Stacy,
 
I totally agree with you, even though I'm still with Steve it's the kissing, cuddles and hugs that I crave.  Although we have talked a lot lately about taking the relationship further, we've been together for 5months now so I don't think we would be rushing into it, and his been so tolorant with it all bless him!  I'm abit nervous about it all though, it's going to be the first time all round for me.  I hope this isn't a too personal question, and if it is I do apologise, but to the females especially; do you still have the sexual sensations?  I'm a bit worried that I won't be a "proper women" if I don't feel everything
 
Happy new year folks!
 
Love Smurf xxx
 
The moral flabbiness born of the bitch goddess Success. That- with the squalid cash interpretation put on the word success- is our national disease.  -William James  1906

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