hi all ---

my dad, an architect, is part of a convention in march where he has been
assigned to speak on accessibility issues w/ a focus on design for
disabilities. he designed my beautiful new home where i am free to live
almost entirely independently. he has asked me to participate in his
presentation and has given me free reign. so here is where i need help ---

I'd like to hear from all of you on the following topics. feel free to write
as much or as little as you'd like. I'd like for all these architects and
engineers to hear first hand from the people they are designing for.

1 -- what are the physical obstacles you deal with every day in your home or
in public and how do they affect you?

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I live in northern Minnesota with extreme cold temperatures and snow.  It would be nice to have door openers and closures work in the extreme temperatures like they do in the summer. It would also be nice to have an economical way to melt snow and ice off the handicap ramp because when you put salt or sand down you end up dragging it throughout your home. It would be nice to have wider doors and hallways and bigger standard bathrooms.

2 -- how would your life be different if you had a home custom built to work
with you and your disability? what would you ask for in that home if money
were not an issue?


  If I had unlimited funds I would want an enclosed ramp leading from the house to the garage to protect me from the weather.  I would want automatic door openers with battery backup that work in the extreme temperatures.  Automatic faucets that turn on when you put your hand underneath them like you find in some public bathrooms.  Bigger rooms and closets with quality wood floors.  I would want the house wired with computer access in every room so I would be able to run the house from within any room by voice activation. Easier opening windows.
3 -- how much time do you spend in your home in an average day?
  12 -- 24 hours per day


4 -- what modifications did you make to your living situation following you are r
disability/accident?

Removed all the carpeting and installed wood floors, knocked down a wall between two bedrooms to make one large bedroom, installed the handicap ramp, took off door knobs and put on lever handles so I can open up outside doors and made the patio door wider by taking out the doorstop and turning the door handle upside down.  Added a phone line to the bedroom for Internet use and put blocks underneath the computer table so I can get underneath it with my wheelchair. 
  
5 -- is there anything you would like architects, engineers and designers to
know from your personal point of view? keep in mind, these are the people
who can make or break accessibility for us.


 Design and test all equipment in extreme cold weather like door openers and closures, vehicle lifts (hydraulics fluid gets too thick where the ramp takes minutes to unfold and to be lowered to the ground) that are remote controls that are easier to use.  Wheelchairs need better drive systems to keep the wheelchair going straight when driving over uneven ground and obstacles. Have wider standard hallways and doorways in new homes in case of accidents that cost disabilities.  Windows that are easier to open by people with disabilities.


i may be writing again w/ more questions as my part of this project
develops. i'm in the beginning phases and not exactly sure where it will
lead. thank you ahead of time for your help. please include your name, age,
city and state you live in, disability and how long you've lived with this
disability. i really think this could be powerful w/ everyone's input. 

 

Jim Krocka, C-5/6 incomplete, 4.5 years post, Duluth, Minnesota.

 

jessica

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