Hi Dillon,
 
I went back to collage to pick up some classes after my SCI and I had my butt break down and needed flap surgery.  After I healed I went back and I ended up getting surgery again.  I made the dean's list both times I went back but I decided to pursue a different lifestyle after the second surgery.  I slowed down a little and started working with my son's education.  
 
It sounds like you're on the right track with the ROHO and the pressure mapping.  What kind of mattress overlay do you use?  I have used a Spinco Bed Pad with Silicore Padding for about 15 years and am pretty happy with it.
http://www.albionsmo.com/pr-spenco-silicore.asp
 
After my SCI I've had to learn to think faster and move slower!  I wish you all the best.
 
With Love,

CtrlAltDel aka Dave
C4/5 Complete - 28 Years Post
Texas, USA 
 
 

dillon awe <[EMAIL PROTECTED]> wrote:

I have had a terrible time with pressures sores.  Either my skin gets red or it breaks open.  My problem with my skin occurs all year long and is frustrating not only because of time it takes to heal but also because I have had to cancel or postpone many activities I wished and planned to participate.

 

I have looked for work or even to volunteer but am extremely hesitant because I know, as has happened frequently in the past,  that I'll either get sick or more likely develop a skin area and have to cancel.  I just bought a new cushion which was modified for my butt and weight using a computer that highlighted my bone prominences but it is not helped very much.  I use a ROHO cushion that has four air compartments.  I try to eat well and do frequent pressure reliefs.

 

Has this problem ever stopped from seeking work etc.?

 

 

How have any of you dealt with this problem?

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