Re: [QUAD-L] lindsey needs help

[Stacy Harim]

Lindsey,  I hope you don't take this wrong, but you sound pretty bitter that you are paralyzed.  I hope that you are coping well.  I had a very hard time when I hit two years.  I went to the Neurologist and that was the mark when he said I wouldn't recover anymore.  I took it very hard and actually got some counseling. It's been 3 and 1/2 yrs for me now. I had a rare type of encephalitis that inflamed my brain and spine that put me into a coma for a month and when I woke up, I was paralyzed from the neck down.  I didn't know what was going on around me for about a month after I woke up and don't have very many memories of the moments I had during that time.  I am doing everything that the doctors said I would never do but never the less that two year mark was very hard. I'm going to school to be a social worker to help disabled adults hopefully.  I'm working towards something that I know about and actually I feel great that I found a purpose for myself as I am.  If I made the wrong assumption, I am very very sorry.   Now your pain,  I went through the same thing about that time as well.  IT's when it was pretty much at it's worst.  I guess I started getting used to it.  I did discuss it with my doctor.  Have you?  I started seeing a pain specialist when they figured out it wasn't any other factors (cushion, too long in chair).  I am taking neurontin and a low dose of methadone.  The same they use for people with addictions b/c it numbs nerve endings somehow.  I also do pressure releases.  No where near as often as I should and I am very lucky I'm not having any problems.  I also sleep on either side at night.  Try to stay off of your butt as much as possible.  Also if you don�t have the strength to push yourself up in the chair, try leaning to each side and pushing off of the other armrest.  That is what I did before I could push up to get my butt off of the cushion.  Good luck with your pain and try discussing it with your doctor.  Fill us in on what happens with the the results and if it really was that cushion or not.   Stacy                                             ----- Original Message ----- From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Wednesday, February 23, 2005 8:01 PM Subject: [QUAD-L] lindsey needs help hello everyone, i have been a  paraplegic for 2 years now in a wheelchair for life.  i have severe pain in my back, but i have another problem i was hoping someone could help me with.  i have a $1000.00 dollar seat cushion for my wheelchair, but its not working.  i am on my butt for 24 hours a day.  either in my wheelchair or lying on my back in bed, there is no rest for my buttochs.  even though i am paralyzed down there i feel extreme pain and pressure.  is there anyone who knows what i can do to relieve the pain and pressure, it is so bad, i cant go on much longer.  please let me know.  thank-you Lindsey-