Darling I’m in indiana but I’m sure that if you still want out I and everyone on this list will work with you 2 try 2 assist u anyway we can 2 get u out. Some things are different but a lot of things r the same. I was surviving with my 2 visits a day yeah seven days a week but the additional waver hrs have come in like the blessing they are :) some of those waiting list seem 4ever but move faster than you think. The 1st thing is 2 get on them all :) I just have medicaid and know that medicaire is better as ssi is better than ssdi everything looks better on the other side :)
As I said ask others where u r at how they got out of nursing homes what steps they took.
On 2/28/05 8:16 PM, "S. Dial" <[EMAIL PROTECTED]> wrote:
Tony,
Thanks for the kind sentiments and for forwarding my email to your BSCIP counselor. :o) Btw, what is BSCIP?
Stacy,
I'm aware that they are supposed to be programs to help people keep out or move from nursing homes and they vary from state to state. I tried very hard not to come into this place, but when I was forced onto Medicare in 2001 (tried refusing and was told "It's FREE so you can't turn it down") and it cut my home health aide twice daily 7 days a week visits (medicaid funded) to once a day 3 times a week. I only got then $567 a month to pay my bills and feed myself there was no way I could afford to pay for attendant care on that. In all the numerous calls I made I stressed over and over that simply being put on Medicare did in no way cure my quadriplegia and I still needed care 7 days a week. Their response? "Well, you're stuck between a rock and a hard place, Miss Dial." Gee, ya think? It's not simply a matter of "those who WANT to get out of nursing homes can" it's also a matter of those who can AFFORD to get out. I did some figuring and had the government helped me to stay home my care may have cost $1500 a month. Now? Just sharing half a room monthly, not including cost of supplies and meds, $4000 a month. Someone benefits monetarily from my situation, unfortunately, it's not me. Though, please, if you know something I don't - share it.
Stephanie
c3/c4 18 yrs post
