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Stephanie,
I know without the support of the people around me I could never make it and I couldn't ask for a better boss and they're a big reason I'm able to stay out of a nursing home.
As long as you're ok and are at peace with yourself that's all that matters.
Take care,
Mark
-------Original Message-------
Date: Wednesday, March 02, 2005 2:44:35 PM
Subject: [QUAD-L] BSCIP / Steph's Situation
To try to answer all your questions ... I am in Florida just outside of Jacksonville. As to BSCIP guess this is just another area where I will fall through the cracks - I contracted Transverse Myelitis at 18 years old in Sept 1986 - I am not a Spinal Cord Injury therefore have been told that I don't "qualify" for such programs. As for Medicaid waiver list I was on that TWO years before coming to the nursing home. Truthfully, guys and gals, I'm tired of trying of doing my damndest, jumping through bureaucratic hoops, to get some living quarters only to go through the rigamarole of finding trustworthy aides without being ripped off, abused and taken advantage of (and, yes, it will happen despite best taken precautions) in the process. Yeah, I miss the perks of living "out there" but there's a whole lot more I don't miss. Maybe I'm just a wuss or maybe I'm just wising up, but whichever I am I doubt even if I were willing to try anymore could I find a program to help me.
Don't judge me too harshly I've been where you are - independent, participating in society, but the knocks kept coming and one day I'd had enough, so I came here and you know what? I'm okay, my life still goes on.
Stephanie
c3/c4 quad 18 yrs post
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