Hi Cevi,
Welcome to the Quad List and hope you consider posting a lot more info about 
yourself.
I did visit your webpage and noticed that there were way too many pop-up ads 
that
slowed down the process of getting your information.  I don't know what state 
you live in or if you decided to go to college after graduation from high 
school, but that is
another thing to consider.
Dr. Bart Green of the Miami Project in Florida, to me, is the leading 
authority of tether spinal cords.  I'm sure that there are others that may also 
be up 
to date and located at: Shepherd Hospital, in Atlanta, Craig Hospital in 
Denver, Kessler Hospital on the East Coast and Dr. Chen at RIC in Chicago.  I 
hope 
that you've considered joining the local chapter of the National Spinal Cord 
Injury Association in your area.
Keep on posting
Best Wishes
W

In a message dated 4/6/05 10:51:15 AM, [EMAIL PROTECTED] writes:

<< Hi.. My name is Cevi.  I am a partial quad.. I am able to walk.  I have 
syringomyelia and Tethered cord syndrome.  I have some questions about TCS and 
am looking for my answers. I already know so much about it... but I have not 
been able to find out what could happen to me if I DO NOT get my TCS surgically 
fixed... like is there a possiblity of my spinal cord snapping if I fall or 
anything...  I know what can happen if I DO get the surgery... I just need to 
find out what could happen if I dont.  My insurance has denied my request to go 
to a spinal cord hospital and I'm trying to put my argument together for my 
appeal letter and I want them to understand what problems I could face if I 
dont 
get this taken care of.  I hope I will be able to find these answers here.  I 
am in so many spinal cord injury groups and have not had any help with this 
question..
You can also check out my website that my mom made for me and for other 
people to learn from.   Horsewmn.faithweb.com
Thank you




Take Care and God Bless
 
CEVI     >>

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