Another 'interviewee' called and wanted to change her interview until Sunday--she forgot her husband was having a colostomy and urostomy today--what!
People keep telling me I should write a book too. We should flood the market with therxse books and name names to show how we are "really" treated! There should be a chapter on good aides too, or something so that they do not go un-noticed. Maybe a 2 set book--The Bad, and The Good!
Dana
[EMAIL PROTECTED]
----- Original Message ----- From: "Silas Shelburne" <[EMAIL PROTECTED]>
To: "Lori Michaelson" <[EMAIL PROTECTED]>; "Quad" <[email protected]>
Sent: Thursday, May 12, 2005 4:32 PM
Subject: Re: [QUAD-L] also, your opinion could help
Oh man!
You wouldn't believe the trouble ive had with nursing and aids, been through 6 in 3 years. One ive got now comes in every morning with alcahol on her breath even drinks through the day. It doesn't seem to bother her so I haven't said anything, hell I may not find another nurse. Thats how despert I am for help. Lol. Thats just the tip of the iceberg that ive been through with help, im real easy too get along with to. That was the trouble with one nurse, she wonted to marry me. Lol. When I said no she ran back to her husband the next week, and quit not long after. Sounds kind of fishey don't it. Oh ill tell you more later, im going to write a book about my trials with help. Lol.
Silas
----- Original Message ----- From: Lori Michaelson
To: Quad
Sent: Wednesday, May 11, 2005 1:35 PM
Subject: Re: [QUAD-L] also, your opinion could help
Believe you me, Stacy, DO consider yourself fortunate!
All us quads have faced the low caliber of character that so many aides have. They want the job, then they don't. Many are thieves.
My latest (via my MediCARE agency) began about a month ago. At first I thought she had it all together. NOT! She's dating a guy in jail and is a single mom to 4 kids under age 11!
In the last 12 days of work here ... she's called in FIVE times with car trouble.
I just don't know how people like them can survive themselves let alone have a conscience.
Lori
-------Original Message-------
From: Stacy Harim
Date: 05/11/05 13:04:02
To: Quad; Dana Miller
Subject: Re: [QUAD-L] also, your opinion could helpwow, the experiences you all are going through with aides makes me sick to my stomach. Makes me realize how lucky I am to have the independence I have. My friend/neighbor is my aide and I mostly just use her for chores. She does more while I am going to school. When I first got home from rehab and needed more personal care, my aides were 2 women one in her 40's and the other early 50's. they bother were very dependable. One got on my nerves once she got comfortable. She stayed longer than I needed her just so she could get overtime so she just sat around. That is minimal compared to what you all are going through. I'm so fortunate that I was physically able to learn to take care of my personal care.
I think you would definitely benefit from the waiver.
Stacy
----- Original Message ----- From: Dana Miller
To: Quad
Sent: Wednesday, May 11, 2005 1:34 PM
Subject: Re: [QUAD-L] also, your opinion could help
For a long time I was on Medicare only. Then noticed Medicaid began to pick
up things for 3 months if I happened to be in the hospital. I started
getting involved in the 'spenddown' just to get my meds paid for. My
attendant program is paid by the state--but had to wait 4 years for it. I
had private insurance before that.
It took me a few years to figure out what medicaid was and how to use the
spenddown. Then my case worker from senior services (a more politically
correct term, ugh) came to do his yearly review and somehow--I don't
ask--came up with 6 hours a week for homemaker services. They come 3 times
a week for 2 hours. They do cleaning, shopping and laundry. I used to have
to pay my attendants to do that. Now they can concentrate on my care.
These people come from agencies and I have gone thru a bunch of them! The
quality of person they hire is not very good because the pay is low. The
good ones move on to better things, or are going to school and just doing
this for side money and experience. Also it seems just as you find one you
like the agency changes their schedule, or theyquit. Just this month, 2
good people quit without notice.
Plus I am needing an attendant and its been slim pickings. One girl who
really looked good, came for 3 days, then 2 days of excuses then never came
back. I just hired a new gal,who I'm not sure
if she is running on all cylinders or not. Then there are the ones who say
they want the job then never show up for training. I have 2 attendants now.
One is going to Florida for a week in June
so need someone to work while she is gone--the new girl said she would--if
she lasts that long.
And now Medicaid has changed and I have to pay a premium to it every month
that is higher than my rent. Its not written in stone tho, so still don't
know what will happen eventually.
Dana
[EMAIL PROTECTED]
----- Original Message ----- From: "Lori Michaelson" <[EMAIL PROTECTED]>
To: "Quad" <[email protected]>
Sent: Tuesday, May 10, 2005 6:52 PM
Subject: Re: [QUAD-L] also, your opinion could help
The waiver programs are for those on MediCAID not MediCARE. For those at,
or near, the poverty level.
Lori
-------Original Message-------
From: [EMAIL PROTECTED]
Date: 05/10/05 16:31:38
To: [EMAIL PROTECTED]; [EMAIL PROTECTED];
[EMAIL PROTECTED]; [email protected]
Subject: Re: [QUAD-L] also, your opinion could helpI Don't understand this waiver thing-----medicare part A hospital is free
but If I would want Part B i'd have to pay each month for it........So for
now I just use my wife's work insurance, as long as she can keep this job
she hates. Waiver must be for part B if income is very low ??
Dan
