I am John's mother and legal guardian. We live in KY. Don't think KY has any plans like that but who knows what they do behind your back. John is not on a vent, thank goodness. He got the trach out when he was in rehab. They will not tell me I can't keep my son at home.
If I can raise enough money I will be taking John to Beijing China sometime in early 2006 for the stem cell implantation. He has been accepted by Dr Huang. Not sure how to get him there yet because he can''t sit for 22 hours in coach class. Any suggestion would be helpful.
Carol in KY
