Hello again,
My name is Lana and my son Gabe is 32 and has a C4-5 SCI,
10 yrs post. He also has other disabilities. He cannot participate right now.
Question: Gabe’s BP goes up in the afternoon around 3:00 everyday. When
he lies down it goes right back down. So it appears to be AD to me. He
developed a really bad pressure sore in the hospital last summer, but it healed
nicely. It is still pink. Is there anything else you guys think it could be?
It’s not a UTI. I’m wondering if he has another kidney stone or
another syrynx (sp). The timing and positional nature screams pressure sore,
but it’s healed. Help!
I just joined again. I have been a member off and on for a
number of years. Why all the discussion about issues that do not have
anything to do with SCI, disability issues and quality of life? Don’t
we really need to discuss advocacy, legislation, life style issues, the slow
death of the ADA and celebrate
each others wins. Like being a grandpa!! God there is so much to discuss
to make life better. We need to address disability
discrimination not other types of discrimination.
I used to come here and there were real conversations
about these issues. One of my favorite posts was from a person who managed to
ride on a motor cycle. She described it in some detail. It inspired me and
I’m sure many to do and be more. Break the rules – screw the
boundaries. The support and advice I received after my son’s injury
kept me sane and in turn kept him sane.
I’m involved in systems advocacy at a State and
Federal level. There is so much to do, learn and be. We have so much to do
for ourselves, loved ones and each other. Can’t we please give the
discrimination of others with different colors of skin alone. Don’t
drive off people who are assets here. If you need to discuss these issues go
to sites that specialize in it.
Lana
Gabe’s mom
