Hi, glad your back! Your post made me remember that after the really bad
pressure sore I had on my coxics, heck, tailbone, my blood pressure seemed
to start bouncing around. So, in bed there would be pressure on it and when
in my chair, little to none. Thats about the only thing that makes sense at
any rate. The air bed does the best it can and lying flat has certainly
helped the other problem areas!
I guess it could be a form of AD, even tho it has been 5 years since the
surgery and the area healed very well. There are some things we just can't
really figure out and as long as it "aint broke, don't fix it"! BG
take care,
Dana
[EMAIL PROTECTED]
----- Original Message -----
From: "Lana Baugh" <[EMAIL PROTECTED]>
To: <[email protected]>
Sent: Friday, June 24, 2005 2:28 AM
Subject: [QUAD-L] back again-help
Hello again,
My name is Lana and my son Gabe is 32 and has a C4-5 SCI, 10 yrs post. He
also has other disabilities. He cannot participate right now. Question:
Gabe's BP goes up in the afternoon around 3:00 everyday. When he lies down
it goes right back down. So it appears to be AD to me. He developed a
really
bad pressure sore in the hospital last summer, but it healed nicely. It is
still pink. Is there anything else you guys think it could be? It's not a
UTI. I'm wondering if he has another kidney stone or another syrynx (sp).
The timing and positional nature screams pressure sore, but it's healed.
Help!
I just joined again. I have been a member off and on for a number of
years.
Why all the discussion about issues that do not have anything to do with
SCI, disability issues and quality of life? Don't we really need to
discuss
advocacy, legislation, life style issues, the slow death of the ADA and
celebrate each others wins. Like being a grandpa!! God there is so much to
discuss to make life better. We need to address disability discrimination
not other types of discrimination.
I used to come here and there were real conversations about these issues.
One of my favorite posts was from a person who managed to ride on a motor
cycle. She described it in some detail. It inspired me and I'm sure many
to
do and be more. Break the rules - screw the boundaries. The support and
advice I received after my son's injury kept me sane and in turn kept him
sane.
I'm involved in systems advocacy at a State and Federal level. There is so
much to do, learn and be. We have so much to do for ourselves, loved ones
and each other. Can't we please give the discrimination of others with
different colors of skin alone. Don't drive off people who are assets
here.
If you need to discuss these issues go to sites that specialize in it.
Lana
Gabe's mom
